PNES awareness

What term do YOU prefer to use when naming your health condition (AKA psychogenic non-epileptic seizures) or talking about your symptoms with others?

Leave a Comment / 2019, News /

Late last year, we posted a survey on the homepage of www.nonepilepticseizures.com that addresses the age-old question: what should we call these particular non-epileptic episodes?  The difference in this blog post is that we will hear from non-professional survey voters and not just the researchers. If you have followed this blog, you might recall that […]

What term do YOU prefer to use when naming your health condition (AKA psychogenic non-epileptic seizures) or talking about your symptoms with others? Read More »

“‘dis-sociated’ – The first ever feature documentary on PNES

Leave a Comment / 2019, News /

I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life

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The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES)

2 Comments / 2019, News /

There is one thing we can be sure of: if we are going to be successful in disseminating information and educating the public (professional and general) about PNES, we need to make sure it is reported on and written about in as many publications and venues as possible. So, imagine my satisfaction in reading and

The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES) Read More »

Psychogenic non-epileptic seizures: Fifth Annual conference held in New Jersey in 2018

1 Comment / 2018, News /

This past Saturday, we held a historic annual conference on psychogenic non-epileptic seizures (PNES)! Historic, for many reasons, one of which is because it was the FIFTH year running that we have hosted this meeting. And as we have now become accustomed, it was successful on many, many levels and left us all feeling energized.

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Psychogenic non-epileptic seizures (PNES) on YouTube®

1 Comment / 2018, News /

Over the last few months, we have been asking those who visit our website: www.nonepilepticseizures.com to respond to a survey.  The question asked was, On YouTube®, which videos on PNES do you find most helpful? The options to choose from included: Videos showing a seizure, educational videos by doctors, educational videos by patients, I don’t

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Drumroll…. Fifth Annual Conference on Psychogenic non-epileptic seizures (PNES) will be taking place this October!

18 Comments / 2018, News /

Five years ago, at the Northeast Regional Epilepsy Group, we took a leap into the unknown and organized our first ever PNES conference for patient and caregivers. Just days before the conference was to take place, we were understandably nervous.  We wondered if anyone would even show up, if there was any interest in the

Drumroll…. Fifth Annual Conference on Psychogenic non-epileptic seizures (PNES) will be taking place this October! Read More »

A fantastic new book on psychogenic non-epileptic seizures “In our words” and why some health professionals should read it

3 Comments / 2018, News /

This blog post has two parts to it. The first part will talk about a wonderful new book called “In Our Words” edited by Markus Reuber, Gregg Rawlings and Steven C. Schachter and which features testimonials of those living with PNES from around the world.  It can be pre-ordered on Amazon with official release date

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Upcoming annual conference on psychogenic non-epileptic seizures 2018-we need your input

15 Comments / 2018, News /

The date has now been announced: October 20th, 2018 from 8:30AM-4PM The place has also been announced: Malcolm Forbes Auditorium Morristown Medical Center 100 Madison Ave, Morristown, NJ 07960 Now, all we need is to hear from you about what you think would be the best topics to present that day for an audience that

Upcoming annual conference on psychogenic non-epileptic seizures 2018-we need your input Read More »

A firefighter diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD) was just featured in a news article

1 Comment / 2018, News /

Yesterday, an article in print and video format came out in which a Canadian firefighter describes the long road he traveled with his diagnosis of PNES. In it, he explains how he started to have problems after experiencing three sequential traumatic experiences. These, first led to developing post-traumatic stress disorder, and then progressed into PNES

A firefighter diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD) was just featured in a news article Read More »

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