What term do YOU prefer to use when naming your health condition (AKA psychogenic non-epileptic seizures) or talking about your symptoms with others?

Late last year, we posted a survey on the homepage of www.nonepilepticseizures.com that addresses the age-old question: what should we call these particular non-epileptic episodes?  The difference in this blog post is that we will hear from non-professional survey voters and not just the researchers. If you have followed this blog, you might recall that in the past, I have written about what professionals think...

“‘dis-sociated’ – The first ever feature documentary on PNES

I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life had fallen apart due to her seizures. She...

The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES)

There is one thing we can be sure of: if we are going to be successful in disseminating information and educating the public (professional and general) about PNES, we need to make sure it is reported on and written about in as many publications and venues as possible. So, imagine my satisfaction in reading and sharing the most recent article that has come out in the ILAE epigraph. Why is this important? Well,...

Psychogenic non-epileptic seizures: Fifth Annual conference held in New Jersey in 2018

This past Saturday, we held a historic annual conference on psychogenic non-epileptic seizures (PNES)! Historic, for many reasons, one of which is because it was the FIFTH year running that we have hosted this meeting. And as we have now become accustomed, it was successful on many, many levels and left us all feeling energized. There were two especially novel and exciting changes this year. We heard and responded...

Psychogenic non-epileptic seizures (PNES) on YouTube®

Over the last few months, we have been asking those who visit our website: www.nonepilepticseizures.com to respond to a survey.  The question asked was, On YouTube®, which videos on PNES do you find most helpful? The options to choose from included: Videos showing a seizure, educational videos by doctors, educational videos by patients, I don’t use YouTube®. A total of 78 visitors responded; they let us know...