Persons diagnosed with psychogenic non-epileptic seizures deserve to be treated humanely by health professionals

Currently, emergency rooms, hospitals in general and medical staff are facing a serious crisis due to the Coronavirus that emerged just months ago but which quickly became a pandemic.  If possible, Emergency Rooms (ERs) should be avoided unless it is absolutely necessary because resources are stretched thin, the risk for exposure to this virus or others is greater in an ER, and especially because usually ERs...

Book review: On the floor again: A raw look at life with nonepileptic seizures by Mia Montgomery

If you have been diagnosed with Psychogenic non-epileptic seizures (PNES) and are feeling alone on this journey, I advise you to pick up a copy of “On the floor again” by young author, Mia Montgomery. This is a highly entertaining book in which you will find yourself turning page after page, wanting to know what will happen to Mia in the end: Will that enchanted childhood become somehow marred by an unhappy...

The Sixth annual Northeast Regional Epilepsy Group conference on psychogenic non-epileptic seizures (PNES) will be held in Manhattan, NY

  On October 19, 2019, we will hold our now historic annual conference on psychogenic non-epileptic seizures (PNES). This will be the sixth year running that we offer this educational program on psychogenic non-epileptic seizures for patients, loved ones, and health professionals. As always, the event is free of charge.  As always, registrations are streaming in from across the US and some have even come in...

What term do YOU prefer to use when naming your health condition (AKA psychogenic non-epileptic seizures) or talking about your symptoms with others?

Late last year, we posted a survey on the homepage of www.nonepilepticseizures.com that addresses the age-old question: what should we call these particular non-epileptic episodes?  The difference in this blog post is that we will hear from non-professional survey voters and not just the researchers. If you have followed this blog, you might recall that in the past, I have written about what professionals think...

“‘dis-sociated’ – The first ever feature documentary on PNES

I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life had fallen apart due to her seizures. She...