Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Breaking news: Results of a major Cognitive Behavioral Therapy (CBT) Study for psychogenic non-epileptic seizures (dissociative seizures) just published

Recently, Goldstein et al published their results from a randomized CBT treatment versus “treatment as usual” (TAU) study in which treatment outcome in patients who had a history of dissociative seizures was compared (Goldstein et al., 2020). The study is the largest and most well-designed study to date. It included an initial 3-month observation period — during which patients were asked to keep a careful log...

Staying healthy as a person living with PNES while staying cooped up during the age of COVID-19

We have all been asked to practice something called “social distancing” which means keeping at least 6 feet from others and avoiding (as of today) being in a group of 10 people. Schools, churches, public buildings, restaurants, gyms, etc. have all been closed for this purpose and now, many of us are stuck at home without our usual daily routine to keep us occupied. Basically, we are to be cooped up for at...

Persons diagnosed with psychogenic non-epileptic seizures deserve to be treated humanely by health professionals

Currently, emergency rooms, hospitals in general and medical staff are facing a serious crisis due to the Coronavirus that emerged just months ago but which quickly became a pandemic.  If possible, Emergency Rooms (ERs) should be avoided unless it is absolutely necessary because resources are stretched thin, the risk for exposure to this virus or others is greater in an ER, and especially because usually ERs...

Poem written by someone living with PNES

This poem was written by a young adult living with the effects of Post-traumatic stress disorder (PTSD) and psychogenic non-epileptic seizures (PNES).  Through this poem she communicates to others what her experience is like.  Perhaps these words may resonate with you too. ITS BLINKING I SEE A BIG FLASH IM MY HEAD YOU FALL WITH A SPLASH YOU COME SO UNEXPECTED SOMETIMES YOU MAKE ME FEEL PROTECTED BUT I CAN GET...

Study on PNES in youth ranging in ages from 13 to 18 years: open for enrollment

Several years back, I co-authored a book with Mary Martiros (https://www.amazon.com/Our-Own-Words-psychogenic-non-epileptic/dp/1516836480).  The book was the brainchild of Mary who had read my Guide to PNES (https://www.amazon.com/Psychogenic-Non-epileptic-Seizures-Lorna-Myers/dp/1492881414/ref=sr_1_1?keywords=myers+pnes&qid=1574603180&sr=8-1) and wrote me to say “I liked your book, but what is...

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