Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Poem written by someone living with PNES

This poem was written by a young adult living with the effects of Post-traumatic stress disorder (PTSD) and psychogenic non-epileptic seizures (PNES).  Through this poem she communicates to others what her experience is like.  Perhaps these words may resonate with you too. ITS BLINKING I SEE A BIG FLASH IM MY HEAD YOU FALL WITH A SPLASH YOU COME SO UNEXPECTED SOMETIMES YOU MAKE ME FEEL PROTECTED BUT I CAN GET...

New article on dissociation and depression in children with PNES compared to children with epilepsy

In June, our team (Myers, Trobliger, Bortnik, Zeng, Segal and Lancman) published: “Dissociation and other clinical phenomena in youth with psychogenic non-epileptic seizures (PNES) compared to youth with epilepsy” in the peer-reviewed journal Seizure: European Journal of Epilepsy. The article had some very interesting findings which I will discuss below. This paper compared 15 youth diagnosed with psychogenic...

A book on psychogenic non-epileptic seizures (PNES) in the 19th Century

Warning: PNES used to be called hysteria in the 19th Century and since this is a historical book, that is the term you will find in it. The Nature/Nurture explanation of human behavior are like two sides of a coin and over the last few centuries, the coin keeps getting tossed every few decades. The book “Medical Muses” shines a light on one of these periods in time, precisely in the 19th Century, a time when the...

Long term vs. short term: when is one preferable to the other in the treatment of psychogenic non-epileptic seizures?

African common toad with warts Today I want to write about an experience I had a few weeks ago. I was speaking with some of my colleagues at a conference about working with patients who are diagnosed with PNES.  Several of them explained that they had been working with patients who had been having seizures (some of them very frequent and intense) for years.  When I asked what sort of treatment they were using,...

“‘dis-sociated’ – The first ever feature documentary on PNES

I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life had fallen apart due to her seizures. She...

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