Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Students living with psychogenic non-epileptic seizures (PNES)-a new study

For almost 20 years, I have been a school nurse. During one of my first years as a school nurse, I met a student with what health care providers were then calling pseudoseizures. While many school personnel were very supportive of this student, there were just as many who were NOT. I heard comments about this student faking seizures. I saw the student miss many days of school. And I watched the student fall farther...

Current research projects for persons diagnosed with psychogenic non-epileptic seizures (PNES), also known as dissociative or functional seizures

One of the ways in which we can help improve the lives of those living with PNES or dissociative seizures is through scientific research.  Fortunately, in the last couple of decades, there has been a proliferation of research studies that have focused on risk, prognostic and outcome factors, diagnostic tools, treatment modalities, among other topics.  Below you can read about two current projects that may...

Psychogenic non-epileptic seizures (PNES)/ functional seizure (FS) conference 2021!  It is back on-bigger and better

For six years straight, the Northeast Regional Epilepsy Group (NEREG), hosted an annual PNES conference for patients, caregivers, and in the later years, for health professionals too. Our last conference was held on 2019 and then, as we all know, the world ground to a halt due to the 2020 pandemic. Although we did not host our 7th annual PNES conference last year, there have been very positive changes that have...

Meet the new Executive Director of FND Hope USA

There is so much that we need to do to improve the lives of those living with PNES.  We definitely need to increase treatment options and to ensure a growing number of clinicians are available to treat this health condition.  To achieve this, research on treatment outcome is a necessity, and as such, funding is required. Until now, clinical trials have been conducted on relatively small samples [except for a...

What if a patient has psychogenic non-epileptic seizures (PNES) but does not report any significant psychological trauma?

It is important for mental health professionals to be cognizant of this because these patients exist and are encountered in psychotherapists’ offices with certain regularity. For decades if not centuries (if we look back to Pierre Janet and Sigmund Freud) it has been understood that psychological trauma is an important risk factor in the development of PNES and other conversion disorders.  However, we can really...

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