In the field of Psychogenic Non-Epileptic Seizures (PNES, also known as functional or dissociative seizures), nothing is more important or necessary than delivering treatments that actually work, that therapists can learn quickly and confidently, and that remain truly accessible — both financially and in terms of the time commitment required. What is one of the […]
I invite you to read our most recent blog post coming from a brilliant mind in the world of functional neurological disorder (FND) and psychogenic nonepileptic seizures (PNES): Steven Painter, founder and CEO of Neurolog. This is a groundbreaking app for functional neurological disorder symptoms that is poised to help thousands living with these symptoms
The nonepileptic seizure Blog has invited author, Linda McClure, to tell us about her book “Mind Games.” It walks the reader through the experience of living with epilepsy and psychogenic nonepileptic seizures (PNES), also known as functional/dissociative seizures. This is a unique group of patients, often excluded from research and that can be difficult to
Functional Seizures and Epilepsy: My dual diagnosis Read More »
The three items listed in the title of this blog post might seem unrelated but they were part of an article that was published last month. The article drew some useful and thought-provoking conclusions that might be useful for clinicians working with PNES. The study described in “Characteristics of patients diagnosed with psychogenic non-epileptic seizures
Driving, depression, and psychogenic non-epileptic seizures (PNES) Read More »
Writing the “Psychogenic Non-Epileptic Seizures Pocketbook” came about after many years of treating patients with PNES and training other clinicians in treating them. It has been humbling and rewarding to work with families and their children and watch them get better and grow into their adulthood. But this isn’t how my career initially started. In
The Psychogenic non-epileptic Seizures Pocketbook-Why Julia Doss wrote it Read More »
The first time I saw a patient diagnosed with PNES was when I was a neuropsychology fellow at an epilepsy center over 20 years ago. Early one morning, I was in a group of trainees and staff and we were visiting patients on rounds with the attending doctor. Before entering one of the rooms, the doctor
The Psychogenic Nonepileptic Seizure Pocketbook: Why I wrote it Read More »
For six years straight, the Northeast Regional Epilepsy Group (NEREG), hosted an annual PNES conference for patients, caregivers, and in the last few years, for health professionals too. Our last and sixth conference was held in 2019 and then, as we all know, the world ground to a halt due to the 2020 pandemic. So,
For this month’s blog post, we have the pleasure and honor of having invited writer, Katie Berger, author of “View from the Floor: Psychogenic non-epileptic seizures: A patient’s perspective” share her experiences with us. Wonderfully, she has now been seizure-free for two years, but I urge you to read her story because in it you
For six years straight, the Northeast Regional Epilepsy Group (NEREG), hosted an annual PNES conference for patients, caregivers, and in the later years, for health professionals too. Our last conference was held on 2019 and then, as we all know, the world ground to a halt due to the 2020 pandemic. Although we did not
There is so much that we need to do to improve the lives of those living with PNES. We definitely need to increase treatment options and to ensure a growing number of clinicians are available to treat this health condition. To achieve this, research on treatment outcome is a necessity, and as such, funding is
