NEAD Archives - Non Epileptic Seizures

“‘dis-sociated’ – The first ever feature documentary on PNES

Leave a Comment / 2019, News / By administrator

I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life …

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The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES)

2 Comments / 2019, News / By administrator

There is one thing we can be sure of: if we are going to be successful in disseminating information and educating the public (professional and general) about PNES, we need to make sure it is reported on and written about in as many publications and venues as possible. So, imagine my satisfaction in reading and …

The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES) Read More »

Functional Neurological Disorders (FND) Conference in Scotland, 2017

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Early in September, I had the pleasure of attending a very exciting conference in Edinburgh, Scotland. The conference was historic and groundbreaking in many ways, not least of which was that the last International FND had been held a total of SEVEN years before! First question to tackle before we move forward is: What are …

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Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify

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You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is …

Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify Read More »

Recommendations for books having to do with psychogenic non-epileptic seizures as holiday gifts 2016

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My position has always been that the gift of knowledge is maybe one of the most wonderful gifts we can give to others. That’s why I so value the work teachers do. I am still in awe of how children enter school as illiterates and in just a few years are taught how to make …

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What do those diagnosed with psychogenic non-epileptic seizures receive along with the diagnosis of PNES when they are discharged?

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For many it may have taken months to years to reach the point of lying in the hospital bed hearing the words: you don’t have “epilepsy,” you have something we call “psychogenic non-epileptic seizures” or “non-epileptic attack disorder.” Getting here may have involved being seen by more than one doctor, receiving all sorts of other …

What do those diagnosed with psychogenic non-epileptic seizures receive along with the diagnosis of PNES when they are discharged? Read More »

A Bike-a-thon to raise funds for Epilepsy Free which grants scholarships to persons with epilepsy and psychogenic non-epileptic seizures (PNES or NEAD)

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When I was a kid, I was not especially athletic. Rather, I was more on the bookish side of things. In fact, I am a bit ashamed of admitting but on more than one occasion, I convinced my mother to obtain a medical note for me so that I would be allowed to not participate …

A Bike-a-thon to raise funds for Epilepsy Free which grants scholarships to persons with epilepsy and psychogenic non-epileptic seizures (PNES or NEAD) Read More »

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