Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Recommendations for summer reading: a variety of choices about and by persons living with Psychogenic non-epileptic seizures (PNES)

Psychoeducation: refers to some form of intervention (lecture, support group meeting or published materials) that aims to educate the audience members/readers about a specific health condition, provides coping suggestions and informs about treatment options.  Usually, psychoeducation is provided by health professionals but not necessarily; patients who have educated themselves about their health issues can prove...

As someone who has PNES, what should I know about the COVID-19 vaccines?

If we can say anything for sure about COVID-19 is that there is still a lot that we do not know. Making matters worse, at times experts have communicated confusing and contradictory information to the public. One of the clearest examples of these confounding messages can be found in the advice provided regarding mask wearing.  In March of 2020, experts on news outlets were saying “definitely, do not wear a...

Studying Emotion, Relationships, and Psychogenic Non-epileptic Seizures (PNES) at Arizona State University

This month’s blog post comes to us from sunny Arizona, more specifically, Dayana Villarreal, Graduate Student, Arizona State University. Below, you are invited to read about her current research project on PNES. She hopes you may decide to take an online survey that will be used to better understand the inner workings of PNES.   When I joined the emotion research lab at Arizona State University (ASU) as a...

How important is alexithymia in the treatment of psychogenic non-epileptic seizures (PNES)? (Post for clinicians)

Spoiler alert: Important in patients who have PNES and high alexithymia What is alexithymia? Basically, it is, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings. In psychology it is associated with two concepts: emotional knowledge (EK) and emotional regulation (ER). EK has to do with: 1) Being able to identify...

Face Masks: to wear or not to wear when you are living with psychogenic non-epileptic seizures (PNES) during the Covid-19 pandemic

In recent months, I have been asked by a few patients who have been diagnosed with PNES (dissociative seizures) whether it is safe to wear a mask with PNES. On one hand, it is becoming obligatory to wear masks in some states.  We have all seen those signs that say: “If you come into this store, you must wear a mask or you will not be served.” On the other, some patients have mentioned that wearing a mask...

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