Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

PNES Psychological Non Epileptic Seizures
You have been told you have alexithymia: Now, what? (Post for patients)| Oct 28th, 2020
Let’s first answer: What is alexithymia? Basically, it means, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings.  In psychogenic non-epileptic seizures (PNES), it is quite common to have some degree of...
Posted by on Sep 7th, 2020 in News | 0 comments

How important is alexithymia in the treatment of psychogenic non-epileptic seizures (PNES)? (Post fo...

Spoiler alert: Important in patients who have PNES and high alexithymia What is alexithymia? Basically, it is, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having...
Posted by on Aug 26th, 2020 in News | 2 comments

Face Masks: to wear or not to wear when you are living with psychogenic non-epileptic seizures (PNES...

In recent months, I have been asked by a few patients who have been diagnosed with PNES (dissociative seizures) whether it is safe to wear a mask with PNES. On one hand, it is becoming obligatory to wear...
Posted by on Jul 13th, 2020 in News | 5 comments

Breaking news: Results of a major Cognitive Behavioral Therapy (CBT) Study for psychogenic non-epile...

Recently, Goldstein et al published their results from a randomized CBT treatment versus “treatment as usual” (TAU) study in which treatment outcome in patients who had a history of dissociative seizures...
Posted by on Mar 17th, 2020 in News | 3 comments

Staying healthy as a person living with PNES while staying cooped up during the age of COVID-19

We have all been asked to practice something called “social distancing” which means keeping at least 6 feet from others and avoiding (as of today) being in a group of 10 people. Schools, churches, public...
Posted by on Mar 14th, 2020 in News | 2 comments

Persons diagnosed with psychogenic non-epileptic seizures deserve to be treated humanely by health p...

Currently, emergency rooms, hospitals in general and medical staff are facing a serious crisis due to the Coronavirus that emerged just months ago but which quickly became a pandemic.  If possible, Emergency...
Posted by on Dec 2nd, 2019 in News | 0 comments

Poem written by someone living with PNES

This poem was written by a young adult living with the effects of Post-traumatic stress disorder (PTSD) and psychogenic non-epileptic seizures (PNES).  Through this poem she communicates to others what her...

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