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PNES Poem

PNES Poem by Nita Dholakia To wake up in the morning is what I wish Waking up in the afternoon is my truth Morning or afternoon, getting up is my win Relaxed and peaceful sleep is now my dream Jolts and jerks with silent grunting Screaming from annoying pain My new routine is not plain …

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Join me in congratulating the 2023 Lorna Myers PNES Scholarship awardees!

Every year, all profits from the sale of “Psychogenic non-epileptic seizures: A guide” are donated to Epilepsy Alliance America, a wonderful foundation that hosts the Lorna Myers PNES Scholarship. This award is offered to any person living in the USA and who has a diagnosis of psychogenic non-epileptic seizures.  The money that is granted can …

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What about driving when you have psychogenic non-epileptic seizures (PNES)?

You may have been unaware until you developed PNES that there are a few medical conditions that can result in the suspension of someone’s driver’s license. These include epilepsy (seizures) and even though PNES is not epilepsy, some people who have PNES may lose consciousness or may lose control of parts of their body or …

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Virtual psychogenic non-epileptic seizures conference for patients, loved ones and their clinicians: Update on current treatments for PNES in adults and children

For six years straight, the Northeast Regional Epilepsy Group (NEREG), hosted an annual PNES conference for patients, caregivers, and in the last few years, for health professionals too. Our last and sixth conference was held in 2019 and then, as we all know, the world ground to a halt due to the 2020 pandemic. So, …

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New: The Psychogenic Non-Epileptic Seizures (also known as dissociative seizures) Pocketbook

  In a few weeks, a new book on PNES is going to be published and will be called: The Psychogenic Non-Epileptic Seizures (also known as dissociative seizures) Pocketbook. The word “pocketbook” is in its title because it is meant to be just that: a book that a clinician might carry in her/his pocket for …

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Students living with psychogenic non-epileptic seizures (PNES)-a new study

  For almost 20 years, I have been a school nurse. During one of my first years as a school nurse, I met a student with what health care providers were then calling pseudoseizures. While many school personnel were very supportive of this student, there were just as many who were NOT. I heard comments …

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Service animals for people living with psychogenic non-epileptic seizures (PNES): some thoughts

I get asked about service dogs for PNES quite a bit and over the last few years, I have had the opportunity to observe my patients’ service dogs and emotional support animals in action. The ones who are really well-trained have left me very impressed at how useful they are in ensuring safety and also …

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Moral injury in female US combat veterans diagnosed with PNES

For this month’s blog post, we have invited a young researcher to share her call for research subjects on this site.  This research has been approved by an institutional review board and is completely voluntary. If you are interested in reading more about it or in participating if you fit the inclusion criteria, click on …

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Current research projects for persons diagnosed with psychogenic non-epileptic seizures (PNES), also known as dissociative or functional seizures

  One of the ways in which we can help improve the lives of those living with PNES or dissociative seizures is through scientific research.  Fortunately, in the last couple of decades, there has been a proliferation of research studies that have focused on risk, prognostic and outcome factors, diagnostic tools, treatment modalities, among other …

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