2018

The good news is that you don’t have epilepsy, instead you have something called PNES

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This blog’s title depicts a common way in which many doctors explain the diagnosis of Psychogenic non-epileptic seizures (PNES) to patients who are newly diagnosed with this disorder. I suspect this presentation is meant to suggest to the patient that having PNES is less terrible, dangerous, maybe potentially intractable, etc. than having epilepsy. However, in …

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Psychogenic non-epileptic seizures: Fifth Annual conference held in New Jersey in 2018

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This past Saturday, we held a historic annual conference on psychogenic non-epileptic seizures (PNES)! Historic, for many reasons, one of which is because it was the FIFTH year running that we have hosted this meeting. And as we have now become accustomed, it was successful on many, many levels and left us all feeling energized. …

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Psychogenic non-epileptic seizures (PNES) on YouTube®

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Over the last few months, we have been asking those who visit our website: www.nonepilepticseizures.com to respond to a survey.  The question asked was, On YouTube®, which videos on PNES do you find most helpful? The options to choose from included: Videos showing a seizure, educational videos by doctors, educational videos by patients, I don’t …

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Are psychogenic non-epileptic seizures (PNES) the same in men and women?

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In 2017, we set about trying to answer a question that had been on my mind for a few years. The query was whether women and men with PNES were the same in all respects or different, and if they were different, in what ways. The reason answering this question is important is because better …

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Drumroll…. Fifth Annual Conference on Psychogenic non-epileptic seizures (PNES) will be taking place this October!

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Five years ago, at the Northeast Regional Epilepsy Group, we took a leap into the unknown and organized our first ever PNES conference for patient and caregivers. Just days before the conference was to take place, we were understandably nervous.  We wondered if anyone would even show up, if there was any interest in the …

Drumroll…. Fifth Annual Conference on Psychogenic non-epileptic seizures (PNES) will be taking place this October! Read More »

A fantastic new book on psychogenic non-epileptic seizures “In our words” and why some health professionals should read it

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This blog post has two parts to it. The first part will talk about a wonderful new book called “In Our Words” edited by Markus Reuber, Gregg Rawlings and Steven C. Schachter and which features testimonials of those living with PNES from around the world.  It can be pre-ordered on Amazon with official release date …

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Raising PNES awareness

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Every so often, I have an invited writer contribute something relevant to PNES on this blog.  Recently, I heard from John Dougherty, author of “Lowering the Shield: Overcoming Psychogenic Seizures” about a disappointing event in his continuing efforts to improve the lives of those living with PNES.  I agreed with him that it merits being …

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Book recommendation: Trauma and Recovery-The aftermath of violence from domestic abuse to political terror by Judith Herman, M.D.

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In 1992, Dr. Herman published this groundbreaking book that, over the years, has helped educate countless clinicians who treat traumatized individuals. I believe I came upon this first edition in 1995.  The most updated version came out recently in 2015.  In my opinion, this book provides one of the clearest and insightful explanations of the …

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Upcoming annual conference on psychogenic non-epileptic seizures 2018-we need your input

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The date has now been announced: October 20th, 2018 from 8:30AM-4PM The place has also been announced: Malcolm Forbes Auditorium Morristown Medical Center 100 Madison Ave, Morristown, NJ 07960 Now, all we need is to hear from you about what you think would be the best topics to present that day for an audience that …

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A firefighter diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD) was just featured in a news article

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Yesterday, an article in print and video format came out in which a Canadian firefighter describes the long road he traveled with his diagnosis of PNES. In it, he explains how he started to have problems after experiencing three sequential traumatic experiences. These, first led to developing post-traumatic stress disorder, and then progressed into PNES …

A firefighter diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD) was just featured in a news article Read More »

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