pseudo seizure

Recommendations for summer reading: a variety of choices about and by persons living with Psychogenic non-epileptic seizures (PNES)

Leave a Comment / 2021, News / By

Psychoeducation: refers to some form of intervention (lecture, support group meeting or published materials) that aims to educate the audience members/readers about a specific health condition, provides coping suggestions and informs about treatment options.  Usually, psychoeducation is provided by health professionals but not necessarily; patients who have educated themselves about their health issues can prove …

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As someone who has PNES, what should I know about the COVID-19 vaccines?

Leave a Comment / 2021, News / By

If we can say anything for sure about COVID-19 is that there is still a lot that we do not know. Making matters worse, at times experts have communicated confusing and contradictory information to the public. One of the clearest examples of these confounding messages can be found in the advice provided regarding mask wearing.  …

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The debate on what to call psychogenic non-epileptic seizures (PNES), non-epileptic attach disorder (NEAD), dissociative seizures, functional seizures, etc. continues

4 Comments / 2021, News / By

This feature article was just published by the International League Against Epilepsy (ILAE) and summarizes meetings that took place last year. https://www.newswise.com/articles/what-should-we-call-psychogenic-non-epileptic-seizures   Note: I will continue to call PNES by this name below since we do not have a better term yet. Why is this important what we call this disorder, you might ask? …

The debate on what to call psychogenic non-epileptic seizures (PNES), non-epileptic attach disorder (NEAD), dissociative seizures, functional seizures, etc. continues Read More »

Shame and Psychogenic non-epileptic seizures (PNES): research topic?

6 Comments / 2021, News / By

A few weeks ago, I was contacted by one of the leaders in the field of research of Psychogenic non-epileptic seizures (PNES); he proposed a project to several professionals in the field of PNES focusing on a topic that is often overlooked not only in PNES but in many other conditions and a variety of …

Shame and Psychogenic non-epileptic seizures (PNES): research topic? Read More »

Studying Emotion, Relationships, and Psychogenic Non-epileptic Seizures (PNES) at Arizona State University

Leave a Comment / 2020, News / By

This month’s blog post comes to us from sunny Arizona, more specifically, Dayana Villarreal, Graduate Student, Arizona State University. Below, you are invited to read about her current research project on PNES. She hopes you may decide to take an online survey that will be used to better understand the inner workings of PNES.   …

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Staying healthy as a person living with PNES while staying cooped up during the age of COVID-19

3 Comments / 2020, News / By

We have all been asked to practice something called “social distancing” which means keeping at least 6 feet from others and avoiding (as of today) being in a group of 10 people. Schools, churches, public buildings, restaurants, gyms, etc. have all been closed for this purpose and now, many of us are stuck at home …

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New article: Long-term outcome in a sample of underprivileged patients with psychogenic nonepileptic seizures (PNES) living in Argentina

Leave a Comment / 2019, News / By

This month, researchers from Argentina (Consejo Nacional de Investigaciones Científicas y Técnicas, de la Universidad de Buenos Aires y del ENyS) together with Dr. Lorna Myers (Director, Psychogenic Non-epileptic Seizures Program at the Northeast Regional Epilepsy Group) published an article in the Epilepsy and Behavior Journal: “Long-term outcome in a sample of underprivileged patients with psychogenic nonepileptic …

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The good news is that you don’t have epilepsy, instead you have something called PNES

1 Comment / 2018, News / By

This blog’s title depicts a common way in which many doctors explain the diagnosis of Psychogenic non-epileptic seizures (PNES) to patients who are newly diagnosed with this disorder. I suspect this presentation is meant to suggest to the patient that having PNES is less terrible, dangerous, maybe potentially intractable, etc. than having epilepsy. However, in …

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Psychogenic non-epileptic seizures: Fifth Annual conference held in New Jersey in 2018

1 Comment / 2018, News / By

This past Saturday, we held a historic annual conference on psychogenic non-epileptic seizures (PNES)! Historic, for many reasons, one of which is because it was the FIFTH year running that we have hosted this meeting. And as we have now become accustomed, it was successful on many, many levels and left us all feeling energized. …

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Are psychogenic non-epileptic seizures (PNES) the same in men and women?

Leave a Comment / 2018, News / By

In 2017, we set about trying to answer a question that had been on my mind for a few years. The query was whether women and men with PNES were the same in all respects or different, and if they were different, in what ways. The reason answering this question is important is because better …

Are psychogenic non-epileptic seizures (PNES) the same in men and women? Read More »

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