Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

A book on psychogenic non-epileptic seizures (PNES) in the 19th Century

Warning: PNES used to be called hysteria in the 19th Century and since this is a historical book, that is the term you will find in it. The Nature/Nurture explanation of human behavior are like two sides of a coin and over the last few centuries, the coin keeps getting tossed every few decades. The book “Medical Muses” shines a light on one of these periods in time, precisely in the 19th Century, a time when the...

What term do YOU prefer to use when naming your health condition (AKA psychogenic non-epileptic seizures) or talking about your symptoms with others?

Late last year, we posted a survey on the homepage of www.nonepilepticseizures.com that addresses the age-old question: what should we call these particular non-epileptic episodes?  The difference in this blog post is that we will hear from non-professional survey voters and not just the researchers. If you have followed this blog, you might recall that in the past, I have written about what professionals think...

“‘dis-sociated’ – The first ever feature documentary on PNES

I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life had fallen apart due to her seizures. She...

The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES)

There is one thing we can be sure of: if we are going to be successful in disseminating information and educating the public (professional and general) about PNES, we need to make sure it is reported on and written about in as many publications and venues as possible. So, imagine my satisfaction in reading and sharing the most recent article that has come out in the ILAE epigraph. Why is this important? Well,...

The good news is that you don’t have epilepsy, instead you have something called PNES

This blog’s title depicts a common way in which many doctors explain the diagnosis of Psychogenic non-epileptic seizures (PNES) to patients who are newly diagnosed with this disorder. I suspect this presentation is meant to suggest to the patient that having PNES is less terrible, dangerous, maybe potentially intractable, etc. than having epilepsy. However, in this year’s American Epilepsy Society meeting there...

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