non epileptic

Psychogenic non-epileptic seizures (PNES) awareness has taken off in 2014: new book on PNES, PNES/ non-epileptic attack disorder awareness colors, PNES conference hosted by NEREG

The year 2014 has been very important for the raising of awareness and education about psychogenic non-epileptic seizure (PNES).  On January, Psychogenic Non-epileptic Seizures: A Guide was published and has now sold almost 400 copies.  Some patients and family members decided to share this book with their neurologists and mental health professionals and wrote me […]

Psychogenic non-epileptic seizures (PNES) awareness has taken off in 2014: new book on PNES, PNES/ non-epileptic attack disorder awareness colors, PNES conference hosted by NEREG Read More »

Psychogenic non-epileptic seizures: beginning a grassroots movement on September 20, 2014?

Even though psychogenic disorders, including psychogenic non-epileptic seizures (PNES) have been around for centuries, they continue to be the subject of ignorance and stigma.  Often, the general public as well as health professionals (including emergency medical personnel, neurologists, and mental health professionals) do not understand them and can end up making things worse.   Patients and

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It has a Name

KT has written this powerful poem about her struggle with her mysterious illness-psychogenic non-epileptic seizures (PNES) and the importance of finally being told what it was exactly that she has been suffering.  She has generously agreed to share with us and we thank her for that. Friends-close friends from near and far decide it is

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Why do Psychogenic non-epileptic seizures (PNES) become chronic for so many?

For the past year or so I have had a survey up on www.nonepilepticseizures.com homepage.  It asks: How long have you been suffering non-epileptic episodes? 109 responses were received.  Note that this is not a scientific survey that is based on those who wished to respond. Over 40% reported that PNES has been part of

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Psychogenic non-epileptic seizures: Ming shares her story of living with PNES

My psychogenic seizures began like this: I was exposed to “Workplace Bullying.” Even though I had exemplary yearly evaluations my supervisor began the bullying and as it increased I reported it to the head boss. They planned to have 5 back to 5 meetings in one day with him and others (there’s a term for

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Psychogenic Non-Epileptic Seizures: How can you have a stress disorder if you’re not feeling stressed?

The question I hear from almost all my patients who have received the diagnosis of psychogenic seizures the first few times we meet is: “How can I have a stress condition if I am not feeling at all stressed? The answer is: There is a difference between feeling stressed and being under stress.   And developing

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Psychogenic Nonepileptic Seizures: A Guide-new book for patients and loved ones hopes to fill the information gap that currently exists

For the past year and a half I have been writing a book on psychogenic seizures for those living with PNES as well as their caregivers and the professionals who work with them.  As we all know, psychogenic seizures look very much like epileptic seizures, but are not triggered by electrical anomalies in the brain

Psychogenic Nonepileptic Seizures: A Guide-new book for patients and loved ones hopes to fill the information gap that currently exists Read More »

Treating Psychogenic non-epileptic seizures: Only half of US psychiatrists accept payment through health insurance

An article came out earlier this week in USA Today that underscored a very serious problem that persons with psychogenic non epileptic seizures (and other mental health conditions) face.  Only half of psychiatrists accept insurance which means that if you need treatment you need to be prepared to pay large out-of-pocket fees. This is not

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Katie shares her experience of living with psychogenic seizures for 4 years

Katie is 22 years old and will graduate from college this spring.  She has also had psychogenic non-epileptic seizures for 4 years.  She contacted me because she wants to be a voice and advocate for PNES, to help others realize they are not alone and that there is hope, and to make positive strides for

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I have psychogenic non-epileptic seizures (PNES) but was never traumatized: Is this you?

In July 2013, we published an article in the Journal Epilepsy and Behavior looking at: Psychological trauma in patients with psychogenic nonepileptic seizures: Trauma characteristics and those who develop PTSD.  The full article can be found here: http://www.sciencedirect.com/science/article/pii/S1525505013001819). We found that 45 out of 61 (73.8%) patients reported experiencing at least one traumatic event in

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