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Creating proper treatment programs for psychogenic non-epileptic seizures in the US

In June and July of this year I blogged on how poor standard of care is in the US for many patients diagnosed with psychogenic non-epileptic seizures. However, this month I am happy to write about a positive experience I had at Overlook Hospital of Summit, New Jersey. In the summer, I blogged about deficient […]

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Are all patients diagnosed with psychogenic non-epileptic seizures (PNESs) the same? Patients with PNES and PTSD are looking different.

What unites patients with PNES into a single category? The fact that they have abnormal behaviors and changes in consciousness that resemble an epileptic seizure, but that are in fact non-epileptic as per EEG? However, right about there is where the similarity ends. To bunch all of PNES patients into one bag and hope to

Are all patients diagnosed with psychogenic non-epileptic seizures (PNESs) the same? Patients with PNES and PTSD are looking different. Read More »

Psychiatry and Psychology are dropping the ball when it comes to psychogenic non epileptic seizures

Dr. Selim Benbadis published an excellent editorial article in the Neuropsychiatry Journal this year in which he called out both the American Psychological and American Psychiatric Association for the absence of information about Psychogenic non-epileptic seizures (conversion disorders) they have on their sites. He pointed out that both associations have a plethora of mental health

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A sad truth: Standard care of psychogenic non epileptic seizures in the US is deficient and how to make this better

There are three major weaknesses in the standard care of PNES: 1) It takes on average 7 years to correctly diagnose the condition; 2) Psychiatry and psychology are woefully ignorant about psychogenic non epileptic seizures (PNES) and unprepared to treat despite PNES being a psychological condition; 3) Although inpatient epilepsy monitoring centers throughout the US

A sad truth: Standard care of psychogenic non epileptic seizures in the US is deficient and how to make this better Read More »

Could Prolonged Exposure (PE) therapy be useful in treating psychogenic non-epileptic seizures?

Up to 90% of patients with psychogenic non-epileptic seizures (PNES) report histories of significant trauma (often childhood sexual and physical abuse).  If we compare with control groups and the general US population, we find that in fact, patients with psychogenic non epileptic seizures have suffered more abuse than these other groups.   As for post-traumatic stress

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Psychogenic non epileptic seizures: are all patients diagnosed with PNES alike? Are there differences?

In order for psychotherapy to have any chance of working, the psychologist needs to have targets to work on and goals for change. The most obvious goal for change in PNES is for the behavioral episodes (i.e. non-epileptic seizures) to stop. In reality, there are a number of other important goals in treating PNES but

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Psychogenic non-epileptic seizures webinar in 2013-differences in opinions

About ten days ago I announced that we will be offering a psychogenic non-epileptic webinar in September of 2013. I received incredibly positive responses from patients, family members and a number of health professionals. But I was surprised to receive some unhappy comments from others in the medical profession. Today’s blog talks about some of

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Psychogenic non-epileptic seizures: what is neuropsychology showing us?

In December of 2012, the neuropsychology team from the Northeast Regional Epilepsy Group will present some interesting early findings about patients with psychogenic non-epileptic seizures as compared to patients with epilepsy. The study compared executive functions (planning and organizing, problem solving, attention, working memory, mental flexibility, set shifting) in patients with psychogenic non-epileptic seizures (PNES)

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Psychogenic non-epileptic seizures: stigma and strength in numbers

A few months back I wrote on my Navigating Epilepsy Blog about stigma in epilepsy. I’m writing on the same topic with regards to psychogenic non epileptic seizures because non-epileptic patients face this kind of stigma too. What is stigma?? According to www.dictionary.reference.com, it’s “a mark of disgrace; a stain or reproach, as on one’s

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