You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is […]
We’d be hard pressed to find a clinician or researcher who doesn’t agree that the proper treatment for a confirmed diagnosis of psychogenic non-epileptic seizures (PNES) or non-epileptic attack disorder (NEAD-as it is called in the UK) is some form of psychotherapy. Although, we’ve known this for decades, we’re still sorely uncertain as to which
For many it may have taken months to years to reach the point of lying in the hospital bed hearing the words: you don’t have “epilepsy,” you have something we call “psychogenic non-epileptic seizures” or “non-epileptic attack disorder.” Getting here may have involved being seen by more than one doctor, receiving all sorts of other
A month ago, we were still in the throes of planning our first conference on psychogenic non-epileptic seizures (PNES). We had PNES brochures printed up, we had ordered many copies of “Psychogenic non-epileptic Seizures: A Guide” to give out at the registration desk, we had purple and teal charms ready, and all our speakers were
A historic meeting in Mahwah, NJ shines a light on psychogenic non-epileptic seizures Read More »
For the past year or so I have had a survey up on www.nonepilepticseizures.com homepage. It asks: How long have you been suffering non-epileptic episodes? 109 responses were received. Note that this is not a scientific survey that is based on those who wished to respond. Over 40% reported that PNES has been part of
Why do Psychogenic non-epileptic seizures (PNES) become chronic for so many? Read More »
This blog post was written by a young woman who was diagnosed with psychogenic seizures (PNES) seven years ago. She has coursed a hard yet enriching road that eventually helped her overcome her PNES. Not only has she overcome the condition, she is now helping others to do the same. we thank her for taking
Psychogenic non-epileptic seizures: GC recommends that you listen to yourself Read More »
Now that you have the right diagnosis, you are finally going to be able to move in the right direction.
Now that you’ve been told you have PNES—What’s the next step? Read More »
