From time to time, I invite persons who have experience with PNES and who have useful information to share with others, to post on this blog. Author of the wonderful book “View From the Floor: Non-epileptic seizures: A patient’s perspective”, Kate Berger, is sharing her knowledge and essential tips on how to navigate the school […]
From time to time, I invite persons who have experience with PNES and who have useful information to share with others, to post on this blog. Over the next few weeks, author of the wonderful book “View From the Floor: Non-epileptic seizures: A patient’s perspective”, Kate Berger, will be sharing her knowledge and essential tips
I remember like it was yesterday, while still a fellow in training, an attending doctor said: Lorna, when you start publishing in the future, make sure you don’t just publish noise. When I asked what he meant by that, he explained that too many articles published in scientific journals are just noise, static like on
Instructions: Read this poem and then read what the author Christine Mauriello explains about how this poem came to be and how she has dealt with her mental health issues over the years. When I first read this poem I was struck with how clearly it expresses the pain so many people with mental illness
Psychogenic non-epileptic seizures (PNES) warrior shares a poem with us Read More »
I absolutely love this book! View from the Floor is such a delightful book that even after reading it 2 times, I still find it shakes me with its honesty and its superb writing style. Kate Berger speaks in a clear and strong voice throughout and shares generously with the reader. If you have ever
View from the Floor- Psychogenic non-epileptic seizures: A Patient’s Perspective Read More »
Although psychogenic seizures are definitely not a new disorder and are certainly a grave and often severely disabling health problem, there are painfully few new research studies that examine novel treatment options that might benefit persons suffering from PNES. So, I was especially pleased when I heard about this new project that is being conducted
This won’t be a surprise to many patients who have been diagnosed with PNES but some of you may be astonished to read: Very little if anything. Psychogenic non-epileptic seizures can go misdiagnosed for an average of 7.2 years.1 In an attempt to remedy this devastating delay, the National Association of Epilepsy Centers-NAEC has established
I must receive an average of 10 emails a week from across the US from persons diagnosed with psychogenic seizures (PNES), family members, nurses, and sometimes therapists. I try very hard to respond to every one as fully as I can, including links and other resources and as quickly as I can because I feel
Psychogenic non-epileptic seizures: What a Psychologist needs to know Read More »
For 14 years, ever since I first met my first patient diagnosed with PNES, I have known that PNES falls clearly within the scope of practice of psychologists, psychiatrists, and psychotherapists. These are the professionals who should be working with this group of patients and who can help them. A major obstacle however is that
From its very inception, this book of patient testimonials was crafted to give a voice to those who suffer from PNES. It was hoped that these voices would reach others who are similarly afflicted as well as family members, loved ones and health professionals. Because the testimonials included in the book came from across the
