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You have been told you have alexithymia: Now, what? (Post for patients)

1 Comment / 2020, News /

Let’s first answer: What is alexithymia?Basically, it means, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings.  In psychogenic non-epileptic seizures (PNES), it is quite common to have some degree of alexithymia.  By the way, alexithymia can also occur in individuals who do

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How important is alexithymia in the treatment of psychogenic non-epileptic seizures (PNES)? (Post for clinicians)

Leave a Comment / 2020, News /

Spoiler alert: Important in patients who have PNES and high alexithymia What is alexithymia? Basically, it is, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings. In psychology it is associated with two concepts: emotional knowledge (EK) and emotional regulation (ER). EK has

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Face Masks: to wear or not to wear when you are living with psychogenic non-epileptic seizures (PNES) during the Covid-19 pandemic

3 Comments / 2020, News /

In recent months, I have been asked by a few patients who have been diagnosed with PNES (dissociative seizures) whether it is safe to wear a mask with PNES. On one hand, it is becoming obligatory to wear masks in some states.  We have all seen those signs that say: “If you come into this

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Breaking news: Results of a major Cognitive Behavioral Therapy (CBT) Study for psychogenic non-epileptic seizures (dissociative seizures) just published

5 Comments / 2020, News /

Recently, Goldstein et al published their results from a randomized CBT treatment versus “treatment as usual” (TAU) study in which treatment outcome in patients who had a history of dissociative seizures was compared (Goldstein et al., 2020). The study is the largest and most well-designed study to date. It included an initial 3-month observation period

Breaking news: Results of a major Cognitive Behavioral Therapy (CBT) Study for psychogenic non-epileptic seizures (dissociative seizures) just published Read More »

Staying healthy as a person living with PNES while staying cooped up during the age of COVID-19

3 Comments / 2020, News /

We have all been asked to practice something called “social distancing” which means keeping at least 6 feet from others and avoiding (as of today) being in a group of 10 people. Schools, churches, public buildings, restaurants, gyms, etc. have all been closed for this purpose and now, many of us are stuck at home

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Persons diagnosed with psychogenic non-epileptic seizures deserve to be treated humanely by health professionals

3 Comments / 2020, News /

Currently, emergency rooms, hospitals in general and medical staff are facing a serious crisis due to the Coronavirus that emerged just months ago but which quickly became a pandemic.  If possible, Emergency Rooms (ERs) should be avoided unless it is absolutely necessary because resources are stretched thin, the risk for exposure to this virus or

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Study on PNES in youth ranging in ages from 13 to 18 years: open for enrollment

10 Comments / 2019, News /

Several years back, I co-authored a book with Mary Martiros (https://www.amazon.com/Our-Own-Words-psychogenic-non-epileptic/dp/1516836480).  The book was the brainchild of Mary who had read my Guide to PNES (https://www.amazon.com/Psychogenic-Non-epileptic-Seizures-Lorna-Myers/dp/1492881414/ref=sr_1_1?keywords=myers+pnes&qid=1574603180&sr=8-1) and wrote me to say “I liked your book, but what is missing in it is the patients’ voices, this is all from a professional’s point of view.” And

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Book review: On the floor again: A raw look at life with nonepileptic seizures by Mia Montgomery

1 Comment / 2019, News /

If you have been diagnosed with Psychogenic non-epileptic seizures (PNES) and are feeling alone on this journey, I advise you to pick up a copy of “On the floor again” by young author, Mia Montgomery. This is a highly entertaining book in which you will find yourself turning page after page, wanting to know what

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The Sixth annual Northeast Regional Epilepsy Group conference on psychogenic non-epileptic seizures (PNES) will be held in Manhattan, NY

2 Comments / 2019, News /

  On October 19, 2019, we will hold our now historic annual conference on psychogenic non-epileptic seizures (PNES). This will be the sixth year running that we offer this educational program on psychogenic non-epileptic seizures for patients, loved ones, and health professionals. As always, the event is free of charge.  As always, registrations are streaming

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