In 2017, we set about trying to answer a question that had been on my mind for a few years. The query was whether women and men with PNES were the same in all respects or different, and if they were different, in what ways. The reason answering this question is important is because better […]
Are psychogenic non-epileptic seizures (PNES) the same in men and women? Read More »
Five years ago, at the Northeast Regional Epilepsy Group, we took a leap into the unknown and organized our first ever PNES conference for patient and caregivers. Just days before the conference was to take place, we were understandably nervous. We wondered if anyone would even show up, if there was any interest in the
This blog post has two parts to it. The first part will talk about a wonderful new book called “In Our Words” edited by Markus Reuber, Gregg Rawlings and Steven C. Schachter and which features testimonials of those living with PNES from around the world. It can be pre-ordered on Amazon with official release date
Every so often, I have an invited writer contribute something relevant to PNES on this blog. Recently, I heard from John Dougherty, author of “Lowering the Shield: Overcoming Psychogenic Seizures” about a disappointing event in his continuing efforts to improve the lives of those living with PNES. I agreed with him that it merits being
In 1992, Dr. Herman published this groundbreaking book that, over the years, has helped educate countless clinicians who treat traumatized individuals. I believe I came upon this first edition in 1995. The most updated version came out recently in 2015. In my opinion, this book provides one of the clearest and insightful explanations of the
The date has now been announced: October 20th, 2018 from 8:30AM-4PM The place has also been announced: Malcolm Forbes Auditorium Morristown Medical Center 100 Madison Ave, Morristown, NJ 07960 Now, all we need is to hear from you about what you think would be the best topics to present that day for an audience that
Upcoming annual conference on psychogenic non-epileptic seizures 2018-we need your input Read More »
Yesterday, an article in print and video format came out in which a Canadian firefighter describes the long road he traveled with his diagnosis of PNES. In it, he explains how he started to have problems after experiencing three sequential traumatic experiences. These, first led to developing post-traumatic stress disorder, and then progressed into PNES
Dis-sociated- is a documentary by Clea Martin Vargas Dis-sociated will be a feature length documentary about Dissociative Seizures, also known as Non-epileptic Attack Disorder (NEAD) or Psychogenic Non-Epileptic Seizures (PNES). Clea decided to make this documentary after witnessing first-hand the tremendous difficulties her friend faced with her diagnosis of PNES (or dissociative seizures), or what
Dis-sociated: A documentary about psychogenic non-epileptic seizures Read More »
This year we had the pleasure of holding what has now become a tradition: our annual conference on psychogenic non-epileptic seizures (PNES)—our fourth annual conference! Some things were new this year though. To begin with, we moved our conference location from Mahwah, NJ to Morristown, NJ, where the Morristown Medical Center generously offered to host
Fourth annual psychogenic non-epileptic seizures conference in New Jersey Read More »
Early in September, I had the pleasure of attending a very exciting conference in Edinburgh, Scotland. The conference was historic and groundbreaking in many ways, not least of which was that the last International FND had been held a total of SEVEN years before! First question to tackle before we move forward is: What are
Functional Neurological Disorders (FND) Conference in Scotland, 2017 Read More »
