Recently, I put out an invitation to persons living with PNES to submit writing samples (poems, write-ups, personal stories, etc). The purpose of opening up the blog like this is to give a voice to persons living with PNES on a platform that is read in the US and abroad and that will reach others […]
Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify
You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is
Prolonged exposure therapy for the treatment of patients diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD)
We’d be hard pressed to find a clinician or researcher who doesn’t agree that the proper treatment for a confirmed diagnosis of psychogenic non-epileptic seizures (PNES) or non-epileptic attack disorder (NEAD-as it is called in the UK) is some form of psychotherapy. Although, we’ve known this for decades, we’re still sorely uncertain as to which
Riding 40 miles for seizures #2
A year ago, riding in a bike marathon seemed like an impossible challenge since I had only ever ridden my bicycle recreationally, had never done anything marathon-like ever before and had not even been an especially athletic child or youth growing up. Now, less than a year later, bike riding through the Northeast of the
Recommendations for books having to do with psychogenic non-epileptic seizures as holiday gifts 2016
My position has always been that the gift of knowledge is maybe one of the most wonderful gifts we can give to others. That’s why I so value the work teachers do. I am still in awe of how children enter school as illiterates and in just a few years are taught how to make
Towards an integrative theory of psychogenic non-epileptic seizures (PNES) by Richard J. Brown, Markus Reuber—highly recommend this article
I’d like to use this month’s blog post to highlight a superb article that was published this year on psychogenic non-epileptic seizures in Clinical Psychology Review (issue 47). In my opinion, this publication is what all professionals who work with PNES should be aspiring to contribute to the field. In past blog posts I have
What do those diagnosed with psychogenic non-epileptic seizures receive along with the diagnosis of PNES when they are discharged?
For many it may have taken months to years to reach the point of lying in the hospital bed hearing the words: you don’t have “epilepsy,” you have something we call “psychogenic non-epileptic seizures” or “non-epileptic attack disorder.” Getting here may have involved being seen by more than one doctor, receiving all sorts of other
New Publication examines how psychogenic non-epileptic seizures (PNES or NEAD) are represented on the Internet.
Many health professionals still hold misconceptions regarding PNES itself. Many still believe that the psychogenic episodes are somehow voluntary in nature. Others are uncertain about prognosis and when it comes to treatment many tend to offer a knee-jerk suggestion of CBT (cognitive behavior therapy) without taking into account that a substantial number of mental health
New International Research Project for persons living with PNES (NEAD)
Six months ago, Prof. Markus Reuber and one of his doctoral graduate students launched a research study in which patients diagnosed with PNES and epilepsy were invited to participate in a writing experience that tested whether this helped them feel more in control of their condition and reduce their seizures and improve their quality of
New International Research Project for persons living with PNES (NEAD) Read More »
Third Annual Psychogenic Seizures (PNES) Non epileptic attack disorder Conference to be held in New Jersey, USA on October 29, 2016
This year’s conference promises to be superb. We are honored to have as our invited speaker, pediatric neuropsychiatrist, Dr. Rochelle Caplan of UCLA (http://people.healthsciences.ucla.edu/institution/personnel?personnel_id=8660) and we will have several other wonderful speakers talking about both PNES diagnosis and treatment in adults and children. We are also working to set up talks by a few new