“‘dis-sociated’ – The first ever feature documentary on PNES

Leave a Comment / 2019, News /

I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life […]

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The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES)

2 Comments / 2019, News /

There is one thing we can be sure of: if we are going to be successful in disseminating information and educating the public (professional and general) about PNES, we need to make sure it is reported on and written about in as many publications and venues as possible. So, imagine my satisfaction in reading and

The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES) Read More »

New article compares patients with psychogenic non-epileptic seizures (PNES) to patients with intractable partial epilepsy on trauma, somatization and dissociation

Leave a Comment / 2019, News /

This month, several colleagues at the Northeast Regional Epilepsy Group published a new article: “Psychological trauma, somatization, dissociation, and psychiatric comorbidities in patients with psychogenic nonepileptic seizures compared with those in patients with intractable partial epilepsy.” The initial aim of the project was to better understand psychological trauma in PNES and in persons with epilepsy (PWEs) and

New article compares patients with psychogenic non-epileptic seizures (PNES) to patients with intractable partial epilepsy on trauma, somatization and dissociation Read More »

The good news is that you don’t have epilepsy, instead you have something called PNES

1 Comment / 2018, News /

This blog’s title depicts a common way in which many doctors explain the diagnosis of Psychogenic non-epileptic seizures (PNES) to patients who are newly diagnosed with this disorder. I suspect this presentation is meant to suggest to the patient that having PNES is less terrible, dangerous, maybe potentially intractable, etc. than having epilepsy. However, in

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Psychogenic non-epileptic seizures: Fifth Annual conference held in New Jersey in 2018

1 Comment / 2018, News /

This past Saturday, we held a historic annual conference on psychogenic non-epileptic seizures (PNES)! Historic, for many reasons, one of which is because it was the FIFTH year running that we have hosted this meeting. And as we have now become accustomed, it was successful on many, many levels and left us all feeling energized.

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Psychogenic non-epileptic seizures (PNES) on YouTube®

1 Comment / 2018, News /

Over the last few months, we have been asking those who visit our website: www.nonepilepticseizures.com to respond to a survey.  The question asked was, On YouTube®, which videos on PNES do you find most helpful? The options to choose from included: Videos showing a seizure, educational videos by doctors, educational videos by patients, I don’t

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Drumroll…. Fifth Annual Conference on Psychogenic non-epileptic seizures (PNES) will be taking place this October!

18 Comments / 2018, News /

Five years ago, at the Northeast Regional Epilepsy Group, we took a leap into the unknown and organized our first ever PNES conference for patient and caregivers. Just days before the conference was to take place, we were understandably nervous.  We wondered if anyone would even show up, if there was any interest in the

Drumroll…. Fifth Annual Conference on Psychogenic non-epileptic seizures (PNES) will be taking place this October! Read More »

A fantastic new book on psychogenic non-epileptic seizures “In our words” and why some health professionals should read it

3 Comments / 2018, News /

This blog post has two parts to it. The first part will talk about a wonderful new book called “In Our Words” edited by Markus Reuber, Gregg Rawlings and Steven C. Schachter and which features testimonials of those living with PNES from around the world.  It can be pre-ordered on Amazon with official release date

A fantastic new book on psychogenic non-epileptic seizures “In our words” and why some health professionals should read it Read More »

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