Psychogenic non-epileptic seizures: what is neuropsychology showing us?

In December of 2012, the neuropsychology team from the Northeast Regional Epilepsy Group will present some interesting early findings about patients with psychogenic non-epileptic seizures as compared to patients with epilepsy. The study compared executive functions (planning and organizing, problem solving, attention, working memory, mental flexibility, set shifting) in patients with psychogenic non-epileptic seizures (PNES) […]

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Psychogenic non-epileptic seizures: stigma and strength in numbers

A few months back I wrote on my Navigating Epilepsy Blog about stigma in epilepsy. I’m writing on the same topic with regards to psychogenic non epileptic seizures because non-epileptic patients face this kind of stigma too. What is stigma?? According to www.dictionary.reference.com, it’s “a mark of disgrace; a stain or reproach, as on one’s

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Talking about Psychogenic Non Epileptic Seizures in Colombia (South America)

Earlier this month, I had the pleasure of being invited to Colombia with two of my colleagues from the Northeast Regional Epilepsy Group to the XVth National Epilepsy Congress. I was asked to speak about psychogenic non –epileptic seizures and in today’s blog I would like to share the experience with you. The congress was

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Psychogenic non epileptic seizures (PNES) can disrupt life in a multitude of ways

Some think that because psychogenic non epileptic seizures are “psychological” that they somehow have less of an impact on life. But for many who have PNES, it can feel like a prison (see picture of handcuffs). PNES has some very real emotional and physical effects and the potential to affect the finances and independence of

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Psychogenic non epileptic seizures: difficulties in reading emotions accurately

In a 2005 article in Epilepsy and Behavior Journal Bewley et. al. reported that just over 90% of PNES sufferers scored positive for “Alexithymia.” What is alexithymia? It is a difficulty: 1) Identifying your own feelings 2) Distinguishing between emotional feelings and the bodily sensations that go along with emotion. 3) Describing feelings to other

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Psychogenic non epileptic seizures and PTSD

According to an article by PNES specialist, Dr. Marcus Reuber (2008), 90% of PNES sufferers have a history of trauma. Not surprisingly, many present with symptoms of post-traumatic stress disorder (PTSD). This means that they have intrusive symptoms (e.g. nightmares, memories), avoidance behavior (of reminders), and hyperarousal symptoms (e.g. startle response, hypervigilance for danger). Research

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Why do patients with psychogenic non epileptic seizures have such poor quality of life?

Recently, I have been reading a lot about quality of life in PNES so that is what I am going to write about today. Two years ago, as part of a research project that our group presented as a poster at the American Epilepsy Society in which we compared self-reports of quality of life in

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