KT has written this powerful poem about her struggle with her mysterious illness-psychogenic non-epileptic seizures (PNES) and the importance of finally being told what it was exactly that she has been suffering. She has generously agreed to share with us and we thank her for that. Friends-close friends from near and far decide it is […]
For the past year or so I have had a survey up on www.nonepilepticseizures.com homepage. It asks: How long have you been suffering non-epileptic episodes? 109 responses were received. Note that this is not a scientific survey that is based on those who wished to respond. Over 40% reported that PNES has been part of
Why do Psychogenic non-epileptic seizures (PNES) become chronic for so many? Read More »
Recently I read a couple of comments about psychogenic seizures on an epilepsy professional Forum and was thoroughly disappointed and irritated to say the least. Although the tone of the comments was essentially professional and apparently trying to be helpful, I was taken aback by how dismissively the PNES patient was spoken of by these
Health Professionals Need to become educated about Psychogenic seizures (PNES) Read More »
This blog post was written by a young woman who was diagnosed with psychogenic seizures (PNES) seven years ago. She has coursed a hard yet enriching road that eventually helped her overcome her PNES. Not only has she overcome the condition, she is now helping others to do the same. we thank her for taking
Psychogenic non-epileptic seizures: GC recommends that you listen to yourself Read More »
Katie is contributing this month’s blog post. In it she gives useful advice based on her own experiences about how to deal with PNES in the workplace. She describes “The Talk” that you may want to have with your boss and workmates and how you might explain to them what you need them to do
Katie offers advice on psychogenic non-epileptic seizures at the workplace Read More »
I am posting as is: In the sciences of medicine and psychology, there are myriad subjects for practitioners to turn their focus to. It shouldn’t surprise anyone that something is going to get lost in the shuffle, and Psychogenic Non-Epileptic Seizures (PNES) appears to have drawn the short end of the stick in that game.
My psychogenic seizures began like this: I was exposed to “Workplace Bullying.” Even though I had exemplary yearly evaluations my supervisor began the bullying and as it increased I reported it to the head boss. They planned to have 5 back to 5 meetings in one day with him and others (there’s a term for
Psychogenic non-epileptic seizures: Ming shares her story of living with PNES Read More »
The question I hear from almost all my patients who have received the diagnosis of psychogenic seizures the first few times we meet is: “How can I have a stress condition if I am not feeling at all stressed? The answer is: There is a difference between feeling stressed and being under stress. And developing
For the past year and a half I have been writing a book on psychogenic seizures for those living with PNES as well as their caregivers and the professionals who work with them. As we all know, psychogenic seizures look very much like epileptic seizures, but are not triggered by electrical anomalies in the brain
An article came out earlier this week in USA Today that underscored a very serious problem that persons with psychogenic non epileptic seizures (and other mental health conditions) face. Only half of psychiatrists accept insurance which means that if you need treatment you need to be prepared to pay large out-of-pocket fees. This is not
