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Recent article: Conversion disorder and the trouble with trauma

1 Comment / 2019, News /

Kanaan and Craig recently published an article “Conversion disorders and the trouble with trauma” (see reference at the bottom of this page) in which they present the reader with a cogent overview of the current debate of whether conversion disorder should be conceptualized as “psychogenic” or instead “as a yet unexplained neurological disorder.” They argue, […]

Recent article: Conversion disorder and the trouble with trauma Read More »

New article on dissociation and depression in children with PNES compared to children with epilepsy

1 Comment / 2019, News /

In June, our team (Myers, Trobliger, Bortnik, Zeng, Segal and Lancman) published: “Dissociation and other clinical phenomena in youth with psychogenic non-epileptic seizures (PNES) compared to youth with epilepsy” in the peer-reviewed journal Seizure: European Journal of Epilepsy. The article had some very interesting findings which I will discuss below. This paper compared 15 youth

New article on dissociation and depression in children with PNES compared to children with epilepsy Read More »

Frozen in time: trauma and psychogenic non-epileptic seizures (PNES)

1 Comment / 2019, News /

This poem was shared by someone who has lived with PNES. Her first seizure occurred with no warning while she was at work.  After an initial diagnosis of epilepsy, rounds of medicine, and realizing that medication was not stopping the seizures, she was diagnosed with PNES.  A traumatic event that occurred to her decades before

Frozen in time: trauma and psychogenic non-epileptic seizures (PNES) Read More »

Long term vs. short term: when is one preferable to the other in the treatment of psychogenic non-epileptic seizures?

1 Comment / 2019, News /

Today I want to write about an experience I had a few weeks ago. I was speaking with some of my colleagues at a conference about working with patients who are diagnosed with PNES.  Several of them explained that they had been working with patients who had been having seizures (some of them very frequent

Long term vs. short term: when is one preferable to the other in the treatment of psychogenic non-epileptic seizures? Read More »

New article: Long-term outcome in a sample of underprivileged patients with psychogenic nonepileptic seizures (PNES) living in Argentina

Leave a Comment / 2019, News /

This month, researchers from Argentina (Consejo Nacional de Investigaciones Científicas y Técnicas, de la Universidad de Buenos Aires y del ENyS) together with Dr. Lorna Myers (Director, Psychogenic Non-epileptic Seizures Program at the Northeast Regional Epilepsy Group) published an article in the Epilepsy and Behavior Journal: “Long-term outcome in a sample of underprivileged patients with psychogenic nonepileptic

New article: Long-term outcome in a sample of underprivileged patients with psychogenic nonepileptic seizures (PNES) living in Argentina Read More »

New article highlight: “Quality of life and psychological dysfunction in traumatized and non-traumatized patients with PNES”

Leave a Comment / 2019, News /

In March, our summer intern, Nadine Boesten, together with her supervisors Ben Wijnen and Lorna Myers published an article with the following title: “Quality of life and psychological dysfunction in traumatized and nontraumatized patients with psychogenic nonepileptic seizures (PNES).” This study aimed to examine whether there are distinct subgroups within those who have psychogenic non-epileptic

New article highlight: “Quality of life and psychological dysfunction in traumatized and non-traumatized patients with PNES” Read More »

What term do YOU prefer to use when naming your health condition (AKA psychogenic non-epileptic seizures) or talking about your symptoms with others?

Leave a Comment / 2019, News /

Late last year, we posted a survey on the homepage of www.nonepilepticseizures.com that addresses the age-old question: what should we call these particular non-epileptic episodes?  The difference in this blog post is that we will hear from non-professional survey voters and not just the researchers. If you have followed this blog, you might recall that

What term do YOU prefer to use when naming your health condition (AKA psychogenic non-epileptic seizures) or talking about your symptoms with others? Read More »

“‘dis-sociated’ – The first ever feature documentary on PNES

Leave a Comment / 2019, News /

I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life

“‘dis-sociated’ – The first ever feature documentary on PNES Read More »

The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES)

2 Comments / 2019, News /

There is one thing we can be sure of: if we are going to be successful in disseminating information and educating the public (professional and general) about PNES, we need to make sure it is reported on and written about in as many publications and venues as possible. So, imagine my satisfaction in reading and

The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES) Read More »

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