Today’s blog is the result of a profound series of conversations I recently had with someone. We were talking about a harmful emotion that can result from experiencing abuse: Hatred. Hatred is different than anger. Anger is an emotion. It is, like all other emotions; it’s neither right or wrong nor good or bad. It […]
Over the last year and a half the psychogenic non-epileptic seizures (PNES) movement has been trailblazing, steadily putting PNES on the map and making sure that this condition is not only heard but also seen. PNES is coming out of the shadows. Last year, one hundred people showed up for the FIRST NEREG PNES conference
Marching for Psychogenic Seizures in Washington, DC on April 11, 2015 Read More »
For several years, I had been hoping to have a conference on psychogenic seizures but when I had brought this up, I was met with doubts. It was thought that there might not be enough interest in the topic of PNES and it was predicted that we might end up standing alone in an
In March of 2011, I blogged about an important topic: what is the proper name for “psychogenic seizures.” Recently, there has been a renewed interest in how we call this condition. In particular, the question that has arisen is whether the word “seizures” should be in the label. In addition, there are a number of
This weekend, I was reading a paper by Dr. Gaston Baslet and his colleagues (Treatment of Psychogenic non-epileptic seizures: Updated review and findings from our mindfulness-based intervention case series, 2014 Clinical EEG and Neuroscience). On page 9 the authors discuss something that was not the main topic of the paper, but that struck me as worthy
Challenges in the management of Psychogenic seizures: Are we playing a role in this? Read More »
“Unless someone like you cares a whole awful lot, nothing is going to get better. It’s not.” Lorax quote-Dr. Seuss This simple quote is powerful because it is true. Psychogenic non-epileptic seizures represent a grave health condition that is still sorely understudied and understood. This condition often wreaks havoc on the lives of those afflicted
Psychogenic non-epileptic seizures: What are your 2015 resolutions? Read More »
The condition of psychogenic non-epileptic seizures has for a very long time been a bit of an orphan in the health field. It can take up to seven years on average to receive the right diagnosis and even once it is made, too often the patients experience a “ping pong effect” of being referred from
What literature can be found about psychogenic seizures on-line, in medical journals, and even in the book I published earlier this year (Psychogenic non-epileptic seizures: A Guide) is written about PNES from a professionals’ perspective. In these writings, the person with PNES is described and examined by the professional onlooker and as such are SUBJECTS
Over the summer, I was reading a book authored by Dr. Michael Trimble “Why Humans Like to Cry: Tragedy, Evolution, and the Brain.” For someone who is seeking to understand how psychogenic non-epileptic seizures occur, the research he discusses in the book is intriguing. The research he cites offers a sound and reasonable explanation of
A month ago, we were still in the throes of planning our first conference on psychogenic non-epileptic seizures (PNES). We had PNES brochures printed up, we had ordered many copies of “Psychogenic non-epileptic Seizures: A Guide” to give out at the registration desk, we had purple and teal charms ready, and all our speakers were
A historic meeting in Mahwah, NJ shines a light on psychogenic non-epileptic seizures Read More »
