For almost 20 years, I have been a school nurse. During one of my first years as a school nurse, I met a student with what health care providers were then calling pseudoseizures. While many school personnel were very supportive of this student, there were just as many who were NOT. I heard comments […]
Students living with psychogenic non-epileptic seizures (PNES)-a new study Read More »
For six years straight, the Northeast Regional Epilepsy Group (NEREG), hosted an annual PNES conference for patients, caregivers, and in the later years, for health professionals too. Our last conference was held on 2019 and then, as we all know, the world ground to a halt due to the 2020 pandemic. Although we did not
There is so much that we need to do to improve the lives of those living with PNES. We definitely need to increase treatment options and to ensure a growing number of clinicians are available to treat this health condition. To achieve this, research on treatment outcome is a necessity, and as such, funding is
Psychoeducation: refers to some form of intervention (lecture, support group meeting or published materials) that aims to educate the audience members/readers about a specific health condition, provides coping suggestions and informs about treatment options. Usually, psychoeducation is provided by health professionals but not necessarily; patients who have educated themselves about their health issues can prove
This feature article was just published by the International League Against Epilepsy (ILAE) and summarizes meetings that took place last year. https://www.newswise.com/articles/what-should-we-call-psychogenic-non-epileptic-seizures Note: I will continue to call PNES by this name below since we do not have a better term yet. Why is this important what we call this disorder, you might ask?
Currently, emergency rooms, hospitals in general and medical staff are facing a serious crisis due to the Coronavirus that emerged just months ago but which quickly became a pandemic. If possible, Emergency Rooms (ERs) should be avoided unless it is absolutely necessary because resources are stretched thin, the risk for exposure to this virus or
If you have been diagnosed with Psychogenic non-epileptic seizures (PNES) and are feeling alone on this journey, I advise you to pick up a copy of “On the floor again” by young author, Mia Montgomery. This is a highly entertaining book in which you will find yourself turning page after page, wanting to know what
On October 19, 2019, we will hold our now historic annual conference on psychogenic non-epileptic seizures (PNES). This will be the sixth year running that we offer this educational program on psychogenic non-epileptic seizures for patients, loved ones, and health professionals. As always, the event is free of charge. As always, registrations are streaming
Late last year, we posted a survey on the homepage of www.nonepilepticseizures.com that addresses the age-old question: what should we call these particular non-epileptic episodes? The difference in this blog post is that we will hear from non-professional survey voters and not just the researchers. If you have followed this blog, you might recall that
I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life
“‘dis-sociated’ – The first ever feature documentary on PNES Read More »
