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A firefighter diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD) was just featured in a news article

Yesterday, an article in print and video format came out in which a Canadian firefighter describes the long road he traveled with his diagnosis of PNES. In it, he explains how he started to have problems after experiencing three sequential traumatic experiences. These, first led to developing post-traumatic stress disorder, and then progressed into PNES […]

A firefighter diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD) was just featured in a news article Read More »

Dis-sociated: A documentary about psychogenic non-epileptic seizures

Dis-sociated- is a documentary by Clea Martin Vargas Dis-sociated will be a feature length documentary about Dissociative Seizures, also known as Non-epileptic Attack Disorder (NEAD) or Psychogenic Non-Epileptic Seizures (PNES). Clea decided to make this documentary after witnessing first-hand the tremendous difficulties her friend faced with her diagnosis of PNES (or dissociative seizures), or what

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Fourth annual psychogenic non-epileptic seizures conference in New Jersey

This year we had the pleasure of holding what has now become a tradition: our annual conference on psychogenic non-epileptic seizures (PNES)—our fourth annual conference! Some things were new this year though. To begin with, we moved our conference location from Mahwah, NJ to Morristown, NJ, where the Morristown Medical Center generously offered to host

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Functional Neurological Disorders (FND) Conference in Scotland, 2017

Early in September, I had the pleasure of attending a very exciting conference in Edinburgh, Scotland. The conference was historic and groundbreaking in many ways, not least of which was that the last International FND had been held a total of SEVEN years before! First question to tackle before we move forward is: What are

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Recently, I put out an invitation to persons living with PNES to submit writing samples (poems, write-ups, personal stories, etc).  The purpose of opening up the blog like this is to give a voice to persons living with PNES on a platform that is read in the US and abroad and that will reach others

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Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify

You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is

Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify Read More »

Prolonged exposure therapy for the treatment of patients diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD)

We’d be hard pressed to find a clinician or researcher who doesn’t agree that the proper treatment for a confirmed diagnosis of psychogenic non-epileptic seizures (PNES) or non-epileptic attack disorder (NEAD-as it is called in the UK) is some form of psychotherapy.  Although, we’ve known this for decades, we’re still sorely uncertain as to which

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Recommendations for books having to do with psychogenic non-epileptic seizures as holiday gifts 2016

My position has always been that the gift of knowledge is maybe one of the most wonderful gifts we can give to others.  That’s why I so value the work teachers do.  I am still in awe of how children enter school as illiterates and in just a few years are taught how to make

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