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Staying healthy as a person living with PNES while staying cooped up during the age of COVID-19

We have all been asked to practice something called “social distancing” which means keeping at least 6 feet from others and avoiding (as of today) being in a group of 10 people. Schools, churches, public buildings, restaurants, gyms, etc. have all been closed for this purpose and now, many of us are stuck at home […]

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Persons diagnosed with psychogenic non-epileptic seizures deserve to be treated humanely by health professionals

Currently, emergency rooms, hospitals in general and medical staff are facing a serious crisis due to the Coronavirus that emerged just months ago but which quickly became a pandemic.  If possible, Emergency Rooms (ERs) should be avoided unless it is absolutely necessary because resources are stretched thin, the risk for exposure to this virus or

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Study on PNES in youth ranging in ages from 13 to 18 years: open for enrollment

Several years back, I co-authored a book with Mary Martiros (https://www.amazon.com/Our-Own-Words-psychogenic-non-epileptic/dp/1516836480).  The book was the brainchild of Mary who had read my Guide to PNES (https://www.amazon.com/Psychogenic-Non-epileptic-Seizures-Lorna-Myers/dp/1492881414/ref=sr_1_1?keywords=myers+pnes&qid=1574603180&sr=8-1) and wrote me to say “I liked your book, but what is missing in it is the patients’ voices, this is all from a professional’s point of view.” And

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Book review: On the floor again: A raw look at life with nonepileptic seizures by Mia Montgomery

If you have been diagnosed with Psychogenic non-epileptic seizures (PNES) and are feeling alone on this journey, I advise you to pick up a copy of “On the floor again” by young author, Mia Montgomery. This is a highly entertaining book in which you will find yourself turning page after page, wanting to know what

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The Sixth annual Northeast Regional Epilepsy Group conference on psychogenic non-epileptic seizures (PNES) will be held in Manhattan, NY

  On October 19, 2019, we will hold our now historic annual conference on psychogenic non-epileptic seizures (PNES). This will be the sixth year running that we offer this educational program on psychogenic non-epileptic seizures for patients, loved ones, and health professionals. As always, the event is free of charge.  As always, registrations are streaming

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Recent article: Conversion disorder and the trouble with trauma

Kanaan and Craig recently published an article “Conversion disorders and the trouble with trauma” (see reference at the bottom of this page) in which they present the reader with a cogent overview of the current debate of whether conversion disorder should be conceptualized as “psychogenic” or instead “as a yet unexplained neurological disorder.” They argue,

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New article on dissociation and depression in children with PNES compared to children with epilepsy

In June, our team (Myers, Trobliger, Bortnik, Zeng, Segal and Lancman) published: “Dissociation and other clinical phenomena in youth with psychogenic non-epileptic seizures (PNES) compared to youth with epilepsy” in the peer-reviewed journal Seizure: European Journal of Epilepsy. The article had some very interesting findings which I will discuss below. This paper compared 15 youth

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Frozen in time: trauma and psychogenic non-epileptic seizures (PNES)

This poem was shared by someone who has lived with PNES. Her first seizure occurred with no warning while she was at work.  After an initial diagnosis of epilepsy, rounds of medicine, and realizing that medication was not stopping the seizures, she was diagnosed with PNES.  A traumatic event that occurred to her decades before

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