My name is JJ and I am 22. My seizures have been a sporadic problem since I was 13. They really became a problem December 2013. I had quit drinking in September, I later discovered my alcoholism was suppressing my seizures. My seizures became unbearable, I was unable to do the things I used […]
Psychogenic non-epileptic seizures: Love and Light Read More »
Patients diagnosed with PNES sometimes share with me that they have encountered people who seem to think that they should be able to stop the seizures by somehow willing them away. Those who hold this erroneous belief are not only from the general public but also health professionals (e.g. emergency medical personnel, doctors and nurses
Why can’t you just stop having these Psychogenic non-epileptic seizures (PNESs)? Read More »
The year 2014 has been very important for the raising of awareness and education about psychogenic non-epileptic seizure (PNES). On January, Psychogenic Non-epileptic Seizures: A Guide was published and has now sold almost 400 copies. Some patients and family members decided to share this book with their neurologists and mental health professionals and wrote me
Even though psychogenic disorders, including psychogenic non-epileptic seizures (PNES) have been around for centuries, they continue to be the subject of ignorance and stigma. Often, the general public as well as health professionals (including emergency medical personnel, neurologists, and mental health professionals) do not understand them and can end up making things worse. Patients and
KT has written this powerful poem about her struggle with her mysterious illness-psychogenic non-epileptic seizures (PNES) and the importance of finally being told what it was exactly that she has been suffering. She has generously agreed to share with us and we thank her for that. Friends-close friends from near and far decide it is
For the past year or so I have had a survey up on www.nonepilepticseizures.com homepage. It asks: How long have you been suffering non-epileptic episodes? 109 responses were received. Note that this is not a scientific survey that is based on those who wished to respond. Over 40% reported that PNES has been part of
Why do Psychogenic non-epileptic seizures (PNES) become chronic for so many? Read More »
Recently I read a couple of comments about psychogenic seizures on an epilepsy professional Forum and was thoroughly disappointed and irritated to say the least. Although the tone of the comments was essentially professional and apparently trying to be helpful, I was taken aback by how dismissively the PNES patient was spoken of by these
Health Professionals Need to become educated about Psychogenic seizures (PNES) Read More »
This blog post was written by a young woman who was diagnosed with psychogenic seizures (PNES) seven years ago. She has coursed a hard yet enriching road that eventually helped her overcome her PNES. Not only has she overcome the condition, she is now helping others to do the same. we thank her for taking
Psychogenic non-epileptic seizures: GC recommends that you listen to yourself Read More »
Katie is contributing this month’s blog post. In it she gives useful advice based on her own experiences about how to deal with PNES in the workplace. She describes “The Talk” that you may want to have with your boss and workmates and how you might explain to them what you need them to do
Katie offers advice on psychogenic non-epileptic seizures at the workplace Read More »
I am posting as is: In the sciences of medicine and psychology, there are myriad subjects for practitioners to turn their focus to. It shouldn’t surprise anyone that something is going to get lost in the shuffle, and Psychogenic Non-Epileptic Seizures (PNES) appears to have drawn the short end of the stick in that game.
