For six years straight, the Northeast Regional Epilepsy Group (NEREG), hosted an annual PNES conference for patients, caregivers, and in the later years, for health professionals too. Our last conference was held on 2019 and then, as we all know, the world ground to a halt due to the 2020 pandemic. Although we did not […]
There is so much that we need to do to improve the lives of those living with PNES. We definitely need to increase treatment options and to ensure a growing number of clinicians are available to treat this health condition. To achieve this, research on treatment outcome is a necessity, and as such, funding is
A few weeks ago, I was contacted by one of the leaders in the field of research of Psychogenic non-epileptic seizures (PNES); he proposed a project to several professionals in the field of PNES focusing on a topic that is often overlooked not only in PNES but in many other conditions and a variety of
Shame and Psychogenic non-epileptic seizures (PNES): research topic? Read More »
Currently, emergency rooms, hospitals in general and medical staff are facing a serious crisis due to the Coronavirus that emerged just months ago but which quickly became a pandemic. If possible, Emergency Rooms (ERs) should be avoided unless it is absolutely necessary because resources are stretched thin, the risk for exposure to this virus or
Several years back, I co-authored a book with Mary Martiros (https://www.amazon.com/Our-Own-Words-psychogenic-non-epileptic/dp/1516836480). The book was the brainchild of Mary who had read my Guide to PNES (https://www.amazon.com/Psychogenic-Non-epileptic-Seizures-Lorna-Myers/dp/1492881414/ref=sr_1_1?keywords=myers+pnes&qid=1574603180&sr=8-1) and wrote me to say “I liked your book, but what is missing in it is the patients’ voices, this is all from a professional’s point of view.” And
Study on PNES in youth ranging in ages from 13 to 18 years: open for enrollment Read More »
Kanaan and Craig recently published an article “Conversion disorders and the trouble with trauma” (see reference at the bottom of this page) in which they present the reader with a cogent overview of the current debate of whether conversion disorder should be conceptualized as “psychogenic” or instead “as a yet unexplained neurological disorder.” They argue,
Recent article: Conversion disorder and the trouble with trauma Read More »
This past Saturday, we held a historic annual conference on psychogenic non-epileptic seizures (PNES)! Historic, for many reasons, one of which is because it was the FIFTH year running that we have hosted this meeting. And as we have now become accustomed, it was successful on many, many levels and left us all feeling energized.
Psychogenic non-epileptic seizures: Fifth Annual conference held in New Jersey in 2018 Read More »
Over the last few months, we have been asking those who visit our website: www.nonepilepticseizures.com to respond to a survey. The question asked was, On YouTube®, which videos on PNES do you find most helpful? The options to choose from included: Videos showing a seizure, educational videos by doctors, educational videos by patients, I don’t
Psychogenic non-epileptic seizures (PNES) on YouTube® Read More »
This blog post has two parts to it. The first part will talk about a wonderful new book called “In Our Words” edited by Markus Reuber, Gregg Rawlings and Steven C. Schachter and which features testimonials of those living with PNES from around the world. It can be pre-ordered on Amazon with official release date
Every so often, I have an invited writer contribute something relevant to PNES on this blog. Recently, I heard from John Dougherty, author of “Lowering the Shield: Overcoming Psychogenic Seizures” about a disappointing event in his continuing efforts to improve the lives of those living with PNES. I agreed with him that it merits being
