A few weeks ago, I was contacted by one of the leaders in the field of research of Psychogenic non-epileptic seizures (PNES); he proposed a project to several professionals in the field of PNES focusing on a topic that is often overlooked not only in PNES but in many other conditions and a variety of […]
Shame and Psychogenic non-epileptic seizures (PNES): research topic? Read More »
This month’s blog post comes to us from sunny Arizona, more specifically, Dayana Villarreal, Graduate Student, Arizona State University. Below, you are invited to read about her current research project on PNES. She hopes you may decide to take an online survey that will be used to better understand the inner workings of PNES.
Let’s first answer: What is alexithymia? Basically, it means, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings. In psychogenic non-epileptic seizures (PNES), it is quite common to have some degree of alexithymia. By the way, alexithymia can also occur in individuals who
You have been told you have alexithymia: Now, what? (Post for patients) Read More »
Spoiler alert: Important in patients who have PNES and high alexithymia What is alexithymia? Basically, it is, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings. In psychology it is associated with two concepts: emotional knowledge (EK) and emotional regulation (ER). EK has
In recent months, I have been asked by a few patients who have been diagnosed with PNES (dissociative seizures) whether it is safe to wear a mask with PNES. On one hand, it is becoming obligatory to wear masks in some states. We have all seen those signs that say: “If you come into this
Recently, Goldstein et al published their results from a randomized CBT treatment versus “treatment as usual” (TAU) study in which treatment outcome in patients who had a history of dissociative seizures was compared (Goldstein et al., 2020). The study is the largest and most well-designed study to date. It included an initial 3-month observation period
We have all been asked to practice something called “social distancing” which means keeping at least 6 feet from others and avoiding (as of today) being in a group of 10 people. Schools, churches, public buildings, restaurants, gyms, etc. have all been closed for this purpose and now, many of us are stuck at home
Currently, emergency rooms, hospitals in general and medical staff are facing a serious crisis due to the Coronavirus that emerged just months ago but which quickly became a pandemic. If possible, Emergency Rooms (ERs) should be avoided unless it is absolutely necessary because resources are stretched thin, the risk for exposure to this virus or
This poem was written by a young adult living with the effects of Post-traumatic stress disorder (PTSD) and psychogenic non-epileptic seizures (PNES). Through this poem she communicates to others what her experience is like. Perhaps these words may resonate with you too. ITS BLINKING I SEE A BIG FLASH IM MY HEAD YOU FALL WITH
Several years back, I co-authored a book with Mary Martiros (https://www.amazon.com/Our-Own-Words-psychogenic-non-epileptic/dp/1516836480). The book was the brainchild of Mary who had read my Guide to PNES (https://www.amazon.com/Psychogenic-Non-epileptic-Seizures-Lorna-Myers/dp/1492881414/ref=sr_1_1?keywords=myers+pnes&qid=1574603180&sr=8-1) and wrote me to say “I liked your book, but what is missing in it is the patients’ voices, this is all from a professional’s point of view.” And
Study on PNES in youth ranging in ages from 13 to 18 years: open for enrollment Read More »
