Today I want to write about an experience I had a few weeks ago. I was speaking with some of my colleagues at a conference about working with patients who are diagnosed with PNES. Several of them explained that they had been working with patients who had been having seizures (some of them very frequent […]
This month, researchers from Argentina (Consejo Nacional de Investigaciones Científicas y Técnicas, de la Universidad de Buenos Aires y del ENyS) together with Dr. Lorna Myers (Director, Psychogenic Non-epileptic Seizures Program at the Northeast Regional Epilepsy Group) published an article in the Epilepsy and Behavior Journal: “Long-term outcome in a sample of underprivileged patients with psychogenic nonepileptic
In March, our summer intern, Nadine Boesten, together with her supervisors Ben Wijnen and Lorna Myers published an article with the following title: “Quality of life and psychological dysfunction in traumatized and nontraumatized patients with psychogenic nonepileptic seizures (PNES).” This study aimed to examine whether there are distinct subgroups within those who have psychogenic non-epileptic
Late last year, we posted a survey on the homepage of www.nonepilepticseizures.com that addresses the age-old question: what should we call these particular non-epileptic episodes? The difference in this blog post is that we will hear from non-professional survey voters and not just the researchers. If you have followed this blog, you might recall that
I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life
“‘dis-sociated’ – The first ever feature documentary on PNES Read More »
There is one thing we can be sure of: if we are going to be successful in disseminating information and educating the public (professional and general) about PNES, we need to make sure it is reported on and written about in as many publications and venues as possible. So, imagine my satisfaction in reading and
This month, several colleagues at the Northeast Regional Epilepsy Group published a new article: “Psychological trauma, somatization, dissociation, and psychiatric comorbidities in patients with psychogenic nonepileptic seizures compared with those in patients with intractable partial epilepsy.” The initial aim of the project was to better understand psychological trauma in PNES and in persons with epilepsy (PWEs) and
This blog’s title depicts a common way in which many doctors explain the diagnosis of Psychogenic non-epileptic seizures (PNES) to patients who are newly diagnosed with this disorder. I suspect this presentation is meant to suggest to the patient that having PNES is less terrible, dangerous, maybe potentially intractable, etc. than having epilepsy. However, in
The good news is that you don’t have epilepsy, instead you have something called PNES Read More »
This past Saturday, we held a historic annual conference on psychogenic non-epileptic seizures (PNES)! Historic, for many reasons, one of which is because it was the FIFTH year running that we have hosted this meeting. And as we have now become accustomed, it was successful on many, many levels and left us all feeling energized.
Psychogenic non-epileptic seizures: Fifth Annual conference held in New Jersey in 2018 Read More »
Over the last few months, we have been asking those who visit our website: www.nonepilepticseizures.com to respond to a survey. The question asked was, On YouTube®, which videos on PNES do you find most helpful? The options to choose from included: Videos showing a seizure, educational videos by doctors, educational videos by patients, I don’t
Psychogenic non-epileptic seizures (PNES) on YouTube® Read More »
