There is one thing we can be sure of: if we are going to be successful in disseminating information and educating the public (professional and general) about PNES, we need to make sure it is reported on and written about in as many publications and venues as possible. So, imagine my satisfaction in reading and […]
This month, several colleagues at the Northeast Regional Epilepsy Group published a new article: “Psychological trauma, somatization, dissociation, and psychiatric comorbidities in patients with psychogenic nonepileptic seizures compared with those in patients with intractable partial epilepsy.” The initial aim of the project was to better understand psychological trauma in PNES and in persons with epilepsy (PWEs) and
This blog’s title depicts a common way in which many doctors explain the diagnosis of Psychogenic non-epileptic seizures (PNES) to patients who are newly diagnosed with this disorder. I suspect this presentation is meant to suggest to the patient that having PNES is less terrible, dangerous, maybe potentially intractable, etc. than having epilepsy. However, in
The good news is that you don’t have epilepsy, instead you have something called PNES Read More »
This past Saturday, we held a historic annual conference on psychogenic non-epileptic seizures (PNES)! Historic, for many reasons, one of which is because it was the FIFTH year running that we have hosted this meeting. And as we have now become accustomed, it was successful on many, many levels and left us all feeling energized.
Psychogenic non-epileptic seizures: Fifth Annual conference held in New Jersey in 2018 Read More »
Over the last few months, we have been asking those who visit our website: www.nonepilepticseizures.com to respond to a survey. The question asked was, On YouTube®, which videos on PNES do you find most helpful? The options to choose from included: Videos showing a seizure, educational videos by doctors, educational videos by patients, I don’t
Psychogenic non-epileptic seizures (PNES) on YouTube® Read More »
In 2017, we set about trying to answer a question that had been on my mind for a few years. The query was whether women and men with PNES were the same in all respects or different, and if they were different, in what ways. The reason answering this question is important is because better
Are psychogenic non-epileptic seizures (PNES) the same in men and women? Read More »
This blog post has two parts to it. The first part will talk about a wonderful new book called “In Our Words” edited by Markus Reuber, Gregg Rawlings and Steven C. Schachter and which features testimonials of those living with PNES from around the world. It can be pre-ordered on Amazon with official release date
Every so often, I have an invited writer contribute something relevant to PNES on this blog. Recently, I heard from John Dougherty, author of “Lowering the Shield: Overcoming Psychogenic Seizures” about a disappointing event in his continuing efforts to improve the lives of those living with PNES. I agreed with him that it merits being
The date has now been announced: October 20th, 2018 from 8:30AM-4PM The place has also been announced: Malcolm Forbes Auditorium Morristown Medical Center 100 Madison Ave, Morristown, NJ 07960 Now, all we need is to hear from you about what you think would be the best topics to present that day for an audience that
Upcoming annual conference on psychogenic non-epileptic seizures 2018-we need your input Read More »
Dis-sociated- is a documentary by Clea Martin Vargas Dis-sociated will be a feature length documentary about Dissociative Seizures, also known as Non-epileptic Attack Disorder (NEAD) or Psychogenic Non-Epileptic Seizures (PNES). Clea decided to make this documentary after witnessing first-hand the tremendous difficulties her friend faced with her diagnosis of PNES (or dissociative seizures), or what
Dis-sociated: A documentary about psychogenic non-epileptic seizures Read More »
