PNES

Challenges in the management of Psychogenic seizures: Are we playing a role in this?

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This weekend, I was reading a paper by Dr. Gaston Baslet and his colleagues (Treatment of Psychogenic non-epileptic seizures: Updated review and findings from our mindfulness-based intervention case series, 2014 Clinical EEG and Neuroscience).  On page 9 the authors discuss something that was not the main topic of the paper, but that struck me as worthy …

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Psychogenic non-epileptic seizures was prominently featured at the American Epilepsy Society Meeting (AES) in Seattle, WA in December 2014

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The condition of psychogenic non-epileptic seizures has for a very long time been a bit of an orphan in the health field.  It can take up to seven years on average to receive the right diagnosis and even once it is made, too often the patients experience a “ping pong effect” of being referred from …

Psychogenic non-epileptic seizures was prominently featured at the American Epilepsy Society Meeting (AES) in Seattle, WA in December 2014 Read More »

Why can’t you just stop having these Psychogenic non-epileptic seizures (PNESs)?

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Patients diagnosed with PNES sometimes share with me that they have encountered people who seem to think that they should be able to stop the seizures by somehow willing them away.  Those who hold this erroneous belief are not only from the general public but also health professionals (e.g. emergency medical personnel, doctors and nurses …

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Psychogenic non-epileptic seizures (PNES) awareness has taken off in 2014: new book on PNES, PNES/ non-epileptic attack disorder awareness colors, PNES conference hosted by NEREG

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The year 2014 has been very important for the raising of awareness and education about psychogenic non-epileptic seizure (PNES).  On January, Psychogenic Non-epileptic Seizures: A Guide was published and has now sold almost 400 copies.  Some patients and family members decided to share this book with their neurologists and mental health professionals and wrote me …

Psychogenic non-epileptic seizures (PNES) awareness has taken off in 2014: new book on PNES, PNES/ non-epileptic attack disorder awareness colors, PNES conference hosted by NEREG Read More »

Psychogenic non-epileptic seizures: beginning a grassroots movement on September 20, 2014?

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Even though psychogenic disorders, including psychogenic non-epileptic seizures (PNES) have been around for centuries, they continue to be the subject of ignorance and stigma.  Often, the general public as well as health professionals (including emergency medical personnel, neurologists, and mental health professionals) do not understand them and can end up making things worse.   Patients and …

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It has a Name

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KT has written this powerful poem about her struggle with her mysterious illness-psychogenic non-epileptic seizures (PNES) and the importance of finally being told what it was exactly that she has been suffering.  She has generously agreed to share with us and we thank her for that. Friends-close friends from near and far decide it is …

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Why do Psychogenic non-epileptic seizures (PNES) become chronic for so many?

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For the past year or so I have had a survey up on www.nonepilepticseizures.com homepage.  It asks: How long have you been suffering non-epileptic episodes? 109 responses were received.  Note that this is not a scientific survey that is based on those who wished to respond. Over 40% reported that PNES has been part of …

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Health Professionals Need to become educated about Psychogenic seizures (PNES)

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Recently I read a couple of comments about psychogenic seizures on an epilepsy professional Forum and was thoroughly disappointed and irritated to say the least.   Although the tone of the comments was essentially professional and apparently trying to be helpful, I was taken aback by how dismissively the PNES patient was spoken of by these …

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Katie offers advice on psychogenic non-epileptic seizures at the workplace

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Katie is contributing this month’s blog post.  In it she gives useful advice based on her own experiences about how to deal with PNES in the workplace.  She describes “The Talk” that you may want to have with your boss and workmates and how you might explain to them what you need them to do …

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