PNES Archives - Page 2 of 6 - Non Epileptic Seizures

Please join me in celebrating the 2021 winners of the Lorna Myers PNES scholarship!

1 Comment / 2021, News / administrator

This year, the Epilepsy Alliance of America awarded eight fantastic women scholarships to assist them in pursuing their education. The main criteria for this award is that the applicant must have a diagnosis of psychogenic non-epileptic seizures (PNES) and can show that he/she is planning on using these funds to further his/her education. Why was […]

Please join me in celebrating the 2021 winners of the Lorna Myers PNES scholarship! Read More »

Meet the new Executive Director of FND Hope USA

3 Comments / 2021, News / administrator

There is so much that we need to do to improve the lives of those living with PNES. We definitely need to increase treatment options and to ensure a growing number of clinicians are available to treat this health condition. To achieve this, research on treatment outcome is a necessity, and as such, funding is

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Recommendations for summer reading: a variety of choices about and by persons living with Psychogenic non-epileptic seizures (PNES)

Leave a Comment / 2021, News / administrator

Psychoeducation: refers to some form of intervention (lecture, support group meeting or published materials) that aims to educate the audience members/readers about a specific health condition, provides coping suggestions and informs about treatment options. Usually, psychoeducation is provided by health professionals but not necessarily; patients who have educated themselves about their health issues can prove

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As someone who has PNES, what should I know about the COVID-19 vaccines?

Leave a Comment / 2021, News / administrator

If we can say anything for sure about COVID-19 is that there is still a lot that we do not know. Making matters worse, at times experts have communicated confusing and contradictory information to the public. One of the clearest examples of these confounding messages can be found in the advice provided regarding mask wearing.

As someone who has PNES, what should I know about the COVID-19 vaccines? Read More »

The debate on what to call psychogenic non-epileptic seizures (PNES), non-epileptic attach disorder (NEAD), dissociative seizures, functional seizures, etc. continues

4 Comments / 2021, News / administrator

This feature article was just published by the International League Against Epilepsy (ILAE) and summarizes meetings that took place last year. https://www.newswise.com/articles/what-should-we-call-psychogenic-non-epileptic-seizures Note: I will continue to call PNES by this name below since we do not have a better term yet. Why is this important what we call this disorder, you might ask?

The debate on what to call psychogenic non-epileptic seizures (PNES), non-epileptic attach disorder (NEAD), dissociative seizures, functional seizures, etc. continues Read More »

Shame and Psychogenic non-epileptic seizures (PNES): research topic?

6 Comments / 2021, News / administrator

A few weeks ago, I was contacted by one of the leaders in the field of research of Psychogenic non-epileptic seizures (PNES); he proposed a project to several professionals in the field of PNES focusing on a topic that is often overlooked not only in PNES but in many other conditions and a variety of

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You have been told you have alexithymia: Now, what? (Post for patients)

1 Comment / 2020, News / administrator

Let’s first answer: What is alexithymia? Basically, it means, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings. In psychogenic non-epileptic seizures (PNES), it is quite common to have some degree of alexithymia. By the way, alexithymia can also occur in individuals who

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Face Masks: to wear or not to wear when you are living with psychogenic non-epileptic seizures (PNES) during the Covid-19 pandemic

3 Comments / 2020, News / administrator

In recent months, I have been asked by a few patients who have been diagnosed with PNES (dissociative seizures) whether it is safe to wear a mask with PNES. On one hand, it is becoming obligatory to wear masks in some states. We have all seen those signs that say: “If you come into this

Face Masks: to wear or not to wear when you are living with psychogenic non-epileptic seizures (PNES) during the Covid-19 pandemic Read More »

Staying healthy as a person living with PNES while staying cooped up during the age of COVID-19

3 Comments / 2020, News / administrator

We have all been asked to practice something called “social distancing” which means keeping at least 6 feet from others and avoiding (as of today) being in a group of 10 people. Schools, churches, public buildings, restaurants, gyms, etc. have all been closed for this purpose and now, many of us are stuck at home

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Poem written by someone living with PNES

Leave a Comment / 2019, News / administrator

This poem was written by a young adult living with the effects of Post-traumatic stress disorder (PTSD) and psychogenic non-epileptic seizures (PNES). Through this poem she communicates to others what her experience is like. Perhaps these words may resonate with you too. ITS BLINKING I SEE A BIG FLASH IM MY HEAD YOU FALL WITH

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