non epileptic

Third Annual Psychogenic Seizures (PNES) Non epileptic attack disorder Conference to be held in New Jersey, USA on October 29, 2016

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This year’s conference promises to be superb.  We are honored to have as our invited speaker, pediatric neuropsychiatrist, Dr. Rochelle Caplan of UCLA (http://people.healthsciences.ucla.edu/institution/personnel?personnel_id=8660) and we will have several other wonderful speakers talking about both PNES diagnosis and treatment in adults and children.  We are also working to set up talks by a few new […]

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A Bike-a-thon to raise funds for Epilepsy Free which grants scholarships to persons with epilepsy and psychogenic non-epileptic seizures (PNES or NEAD)

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When I was a kid, I was not especially athletic. Rather, I was more on the bookish side of things. In fact, I am a bit ashamed of admitting but on more than one occasion, I convinced my mother to obtain a medical note for me so that I would be allowed to not participate

A Bike-a-thon to raise funds for Epilepsy Free which grants scholarships to persons with epilepsy and psychogenic non-epileptic seizures (PNES or NEAD) Read More »

Pseudoseizures, the bias held by some health professionals and this really has to stop!

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Warning: the content in this blog post may be upsetting and hurtful to the reader-it contains insulting and coarse language found on-line describing patients with PNES   For a few months three of us have been working on a project examining how often PNES (and all the other names that this condition goes by) appears

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View from the Floor- Psychogenic non-epileptic seizures: A Patient’s Perspective

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I absolutely love this book! View from the Floor is such a delightful book that even after reading it 2 times, I still find it shakes me with its honesty and its superb writing style.  Kate Berger speaks in a clear and strong voice throughout and shares generously with the reader. If you have ever

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What are a lot of epilepsy centers in the US doing for their patients once they diagnose them with psychogenic non-epileptic seizures (PNES)?

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 This won’t be a surprise to many patients who have been diagnosed with PNES but some of you may be astonished to read:  Very little if anything. Psychogenic non-epileptic seizures can go misdiagnosed for an average of 7.2 years.1 In an attempt to remedy this devastating delay, the National Association of Epilepsy Centers-NAEC has established

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Why do children have psychogenic seizures (PNES)? Is it because their parents are too nice to them?

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In the last couple of weeks, an article started to appear in different social media outlets in which a neurologist was quoted as saying that an important contributing factor in functional illnesses (including seizures and paralysis) in children is that their parents are showering the children with “too much love and attention.”  http://www.telegraph.co.uk/culture/hay-festival/11640715/Parents-can-be-too-nice-to-their-children-neurologist-warns.html There seems

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Challenges in the management of Psychogenic seizures: Are we playing a role in this?

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This weekend, I was reading a paper by Dr. Gaston Baslet and his colleagues (Treatment of Psychogenic non-epileptic seizures: Updated review and findings from our mindfulness-based intervention case series, 2014 Clinical EEG and Neuroscience).  On page 9 the authors discuss something that was not the main topic of the paper, but that struck me as worthy

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Why can’t you just stop having these Psychogenic non-epileptic seizures (PNESs)?

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Patients diagnosed with PNES sometimes share with me that they have encountered people who seem to think that they should be able to stop the seizures by somehow willing them away.  Those who hold this erroneous belief are not only from the general public but also health professionals (e.g. emergency medical personnel, doctors and nurses

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