non epileptic

Pseudoseizures, the bias held by some health professionals and this really has to stop!

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Warning: the content in this blog post may be upsetting and hurtful to the reader-it contains insulting and coarse language found on-line describing patients with PNES   For a few months three of us have been working on a project examining how often PNES (and all the other names that this condition goes by) appears […]

Pseudoseizures, the bias held by some health professionals and this really has to stop! Read More »

View from the Floor- Psychogenic non-epileptic seizures: A Patient’s Perspective

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I absolutely love this book! View from the Floor is such a delightful book that even after reading it 2 times, I still find it shakes me with its honesty and its superb writing style.  Kate Berger speaks in a clear and strong voice throughout and shares generously with the reader. If you have ever

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What are a lot of epilepsy centers in the US doing for their patients once they diagnose them with psychogenic non-epileptic seizures (PNES)?

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 This won’t be a surprise to many patients who have been diagnosed with PNES but some of you may be astonished to read:  Very little if anything. Psychogenic non-epileptic seizures can go misdiagnosed for an average of 7.2 years.1 In an attempt to remedy this devastating delay, the National Association of Epilepsy Centers-NAEC has established

What are a lot of epilepsy centers in the US doing for their patients once they diagnose them with psychogenic non-epileptic seizures (PNES)? Read More »

Why do children have psychogenic seizures (PNES)? Is it because their parents are too nice to them?

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In the last couple of weeks, an article started to appear in different social media outlets in which a neurologist was quoted as saying that an important contributing factor in functional illnesses (including seizures and paralysis) in children is that their parents are showering the children with “too much love and attention.”  http://www.telegraph.co.uk/culture/hay-festival/11640715/Parents-can-be-too-nice-to-their-children-neurologist-warns.html There seems

Why do children have psychogenic seizures (PNES)? Is it because their parents are too nice to them? Read More »

Challenges in the management of Psychogenic seizures: Are we playing a role in this?

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This weekend, I was reading a paper by Dr. Gaston Baslet and his colleagues (Treatment of Psychogenic non-epileptic seizures: Updated review and findings from our mindfulness-based intervention case series, 2014 Clinical EEG and Neuroscience).  On page 9 the authors discuss something that was not the main topic of the paper, but that struck me as worthy

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Why can’t you just stop having these Psychogenic non-epileptic seizures (PNESs)?

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Patients diagnosed with PNES sometimes share with me that they have encountered people who seem to think that they should be able to stop the seizures by somehow willing them away.  Those who hold this erroneous belief are not only from the general public but also health professionals (e.g. emergency medical personnel, doctors and nurses

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Psychogenic non-epileptic seizures (PNES) awareness has taken off in 2014: new book on PNES, PNES/ non-epileptic attack disorder awareness colors, PNES conference hosted by NEREG

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The year 2014 has been very important for the raising of awareness and education about psychogenic non-epileptic seizure (PNES).  On January, Psychogenic Non-epileptic Seizures: A Guide was published and has now sold almost 400 copies.  Some patients and family members decided to share this book with their neurologists and mental health professionals and wrote me

Psychogenic non-epileptic seizures (PNES) awareness has taken off in 2014: new book on PNES, PNES/ non-epileptic attack disorder awareness colors, PNES conference hosted by NEREG Read More »

Psychogenic non-epileptic seizures: beginning a grassroots movement on September 20, 2014?

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Even though psychogenic disorders, including psychogenic non-epileptic seizures (PNES) have been around for centuries, they continue to be the subject of ignorance and stigma.  Often, the general public as well as health professionals (including emergency medical personnel, neurologists, and mental health professionals) do not understand them and can end up making things worse.   Patients and

Psychogenic non-epileptic seizures: beginning a grassroots movement on September 20, 2014? Read More »

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