diagnostic delay

The good news is that you don’t have epilepsy, instead you have something called PNES

1 Comment / 2018, News /

This blog’s title depicts a common way in which many doctors explain the diagnosis of Psychogenic non-epileptic seizures (PNES) to patients who are newly diagnosed with this disorder. I suspect this presentation is meant to suggest to the patient that having PNES is less terrible, dangerous, maybe potentially intractable, etc. than having epilepsy. However, in […]

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Why do Psychogenic non-epileptic seizures (PNES) become chronic for so many?

14 Comments / News /

For the past year or so I have had a survey up on www.nonepilepticseizures.com homepage.  It asks: How long have you been suffering non-epileptic episodes? 109 responses were received.  Note that this is not a scientific survey that is based on those who wished to respond. Over 40% reported that PNES has been part of

Why do Psychogenic non-epileptic seizures (PNES) become chronic for so many? Read More »

A sad truth: Standard care of psychogenic non epileptic seizures in the US is deficient and how to make this better

7 Comments / News /

There are three major weaknesses in the standard care of PNES: 1) It takes on average 7 years to correctly diagnose the condition; 2) Psychiatry and psychology are woefully ignorant about psychogenic non epileptic seizures (PNES) and unprepared to treat despite PNES being a psychological condition; 3) Although inpatient epilepsy monitoring centers throughout the US

A sad truth: Standard care of psychogenic non epileptic seizures in the US is deficient and how to make this better Read More »

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