News

You have been told you have alexithymia: Now, what? (Post for patients)

1 Comment / 2020, News /

Let’s first answer: What is alexithymia? Basically, it means, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings.  In psychogenic non-epileptic seizures (PNES), it is quite common to have some degree of alexithymia.  By the way, alexithymia can also occur in individuals who […]

You have been told you have alexithymia: Now, what? (Post for patients) Read More »

How important is alexithymia in the treatment of psychogenic non-epileptic seizures (PNES)? (Post for clinicians)

Leave a Comment / 2020, News /

Spoiler alert: Important in patients who have PNES and high alexithymia What is alexithymia? Basically, it is, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings. In psychology it is associated with two concepts: emotional knowledge (EK) and emotional regulation (ER). EK has

How important is alexithymia in the treatment of psychogenic non-epileptic seizures (PNES)? (Post for clinicians) Read More »

Face Masks: to wear or not to wear when you are living with psychogenic non-epileptic seizures (PNES) during the Covid-19 pandemic

3 Comments / 2020, News /

In recent months, I have been asked by a few patients who have been diagnosed with PNES (dissociative seizures) whether it is safe to wear a mask with PNES. On one hand, it is becoming obligatory to wear masks in some states.  We have all seen those signs that say: “If you come into this

Face Masks: to wear or not to wear when you are living with psychogenic non-epileptic seizures (PNES) during the Covid-19 pandemic Read More »

Breaking news: Results of a major Cognitive Behavioral Therapy (CBT) Study for psychogenic non-epileptic seizures (dissociative seizures) just published

5 Comments / 2020, News /

Recently, Goldstein et al published their results from a randomized CBT treatment versus “treatment as usual” (TAU) study in which treatment outcome in patients who had a history of dissociative seizures was compared (Goldstein et al., 2020). The study is the largest and most well-designed study to date. It included an initial 3-month observation period

Breaking news: Results of a major Cognitive Behavioral Therapy (CBT) Study for psychogenic non-epileptic seizures (dissociative seizures) just published Read More »

Staying healthy as a person living with PNES while staying cooped up during the age of COVID-19

3 Comments / 2020, News /

We have all been asked to practice something called “social distancing” which means keeping at least 6 feet from others and avoiding (as of today) being in a group of 10 people. Schools, churches, public buildings, restaurants, gyms, etc. have all been closed for this purpose and now, many of us are stuck at home

Staying healthy as a person living with PNES while staying cooped up during the age of COVID-19 Read More »

Persons diagnosed with psychogenic non-epileptic seizures deserve to be treated humanely by health professionals

3 Comments / 2020, News /

Currently, emergency rooms, hospitals in general and medical staff are facing a serious crisis due to the Coronavirus that emerged just months ago but which quickly became a pandemic.  If possible, Emergency Rooms (ERs) should be avoided unless it is absolutely necessary because resources are stretched thin, the risk for exposure to this virus or

Persons diagnosed with psychogenic non-epileptic seizures deserve to be treated humanely by health professionals Read More »

Study on PNES in youth ranging in ages from 13 to 18 years: open for enrollment

10 Comments / 2019, News /

Several years back, I co-authored a book with Mary Martiros (https://www.amazon.com/Our-Own-Words-psychogenic-non-epileptic/dp/1516836480).  The book was the brainchild of Mary who had read my Guide to PNES (https://www.amazon.com/Psychogenic-Non-epileptic-Seizures-Lorna-Myers/dp/1492881414/ref=sr_1_1?keywords=myers+pnes&qid=1574603180&sr=8-1) and wrote me to say “I liked your book, but what is missing in it is the patients’ voices, this is all from a professional’s point of view.” And

Study on PNES in youth ranging in ages from 13 to 18 years: open for enrollment Read More »

Book review: On the floor again: A raw look at life with nonepileptic seizures by Mia Montgomery

1 Comment / 2019, News /

If you have been diagnosed with Psychogenic non-epileptic seizures (PNES) and are feeling alone on this journey, I advise you to pick up a copy of “On the floor again” by young author, Mia Montgomery. This is a highly entertaining book in which you will find yourself turning page after page, wanting to know what

Book review: On the floor again: A raw look at life with nonepileptic seizures by Mia Montgomery Read More »

The Sixth annual Northeast Regional Epilepsy Group conference on psychogenic non-epileptic seizures (PNES) will be held in Manhattan, NY

2 Comments / 2019, News /

  On October 19, 2019, we will hold our now historic annual conference on psychogenic non-epileptic seizures (PNES). This will be the sixth year running that we offer this educational program on psychogenic non-epileptic seizures for patients, loved ones, and health professionals. As always, the event is free of charge.  As always, registrations are streaming

The Sixth annual Northeast Regional Epilepsy Group conference on psychogenic non-epileptic seizures (PNES) will be held in Manhattan, NY Read More »

Sign up for our newsletters

Stay up-to-date on PNES non-epileptic seizures.

Scroll to Top