PNES Poem by Nita Dholakia To wake up in the morning is what I wish Waking up in the afternoon is my truth Morning or afternoon, getting up is my win Relaxed and peaceful sleep is now my dream Jolts and jerks with silent grunting Screaming from annoying pain My new routine is not plain […]
There is so much that we need to do to improve the lives of those living with PNES. We definitely need to increase treatment options and to ensure a growing number of clinicians are available to treat this health condition. To achieve this, research on treatment outcome is a necessity, and as such, funding is
Psychoeducation: refers to some form of intervention (lecture, support group meeting or published materials) that aims to educate the audience members/readers about a specific health condition, provides coping suggestions and informs about treatment options. Usually, psychoeducation is provided by health professionals but not necessarily; patients who have educated themselves about their health issues can prove
If we can say anything for sure about COVID-19 is that there is still a lot that we do not know. Making matters worse, at times experts have communicated confusing and contradictory information to the public. One of the clearest examples of these confounding messages can be found in the advice provided regarding mask wearing.
As someone who has PNES, what should I know about the COVID-19 vaccines? Read More »
This feature article was just published by the International League Against Epilepsy (ILAE) and summarizes meetings that took place last year. https://www.newswise.com/articles/what-should-we-call-psychogenic-non-epileptic-seizures Note: I will continue to call PNES by this name below since we do not have a better term yet. Why is this important what we call this disorder, you might ask?
Does it matter what we call PNES? In Shakespeare’s Romeo and Juliette, she said: What’s in a name? that which we call a rose by any other name would smell as sweet… Similarly, as kids we were taught: Sticks and stones may break my bones, but names will never hurt me. What do these two
Psychogenic, pseudo, psychological: why does PNES have so many names? Read More »
