nonepileptic

Seizure Action Plans (SAP) for psychogenic nonepileptic seizures (PNES)

Leave a Comment / 2026, News, nonepileptic /

What is a SAP? Seizure action plans are personalized, written documents created with your healthcare provider and include your diagnosis, a description of your typical episodes, and instructions for others witnessing the seizure on how to respond appropriately. They also typically include the name and number of your emergency contact person. Sample SAP:Seizure Action Plan […]

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Functional seizures instead of psychogenic nonepileptic seizures: Seemingly sanitized terminological shifts may seem progressive, but are they?

1 Comment / 2026, News /

Functional seizures: Sanitized terminological shifts may seem progressive but can be harmful Late last year, an ILAE Task Force proposal (Hingray et al., 2025) was published, urging that the term “psychogenic nonepileptic seizures (PNES)” be replaced with the new and improved “functional/dissociative seizures (F/DS).”  It is my understanding that some of the ILAE task force

Functional seizures instead of psychogenic nonepileptic seizures: Seemingly sanitized terminological shifts may seem progressive, but are they? Read More »

Announcement: new poetry book by a young person living with PNES

Leave a Comment / 2025, News, nonepileptic /

Hello everyone,My name is Matina Alexis, and I’m so grateful to be here. I live with Psychogenic Non-Epileptic Seizures (PNES), and I’m still in the process of healing. I continue to experience seizures, and through my diagnosis, I uncovered the deeper cause: repressed childhood trauma. I once believed I had already faced and understood my

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What about driving when you have psychogenic non-epileptic seizures (PNES)?

2 Comments / 2023, News /

You may have been unaware until you developed PNES that there are a few medical conditions that can result in the suspension of someone’s driver’s license. These include epilepsy (seizures) and even though PNES is not epilepsy, some people who have PNES may lose consciousness or may lose control of parts of their body or

What about driving when you have psychogenic non-epileptic seizures (PNES)? Read More »

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