Third Annual Psychogenic Seizures (PNES) Non epileptic attack disorder Conference to be held in New Jersey, USA on October 29, 2016

This year’s conference promises to be superb.  We are honored to have as our invited speaker, pediatric neuropsychiatrist, Dr. Rochelle Caplan of UCLA (http://people.healthsciences.ucla.edu/institution/personnel?personnel_id=8660) and we will have several other wonderful speakers talking about both PNES diagnosis and treatment in adults and children.  We are also working to set up talks by a few new […]

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Choosing “functional seizures” over PNES: what might happen

Abandoning the term “psychogenic nonepileptic seizures” (PNES) in favor of “functional (dissociative) seizures” or simply “functional seizures” needs to be examined. We need to consider possible unintended negative consequences of this name change. My sense of urgency comes from a troubling scenario I foresee. Read on and feel free to challenge me on this or

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Sounding the alarm: the push for “functional” seizures rather than “psychogenic” can have serious unintended consequences

A recent ILAE Task Force proposal (Hingray et al., 2025) recommends replacing the term “psychogenic nonepileptic seizures (PNES)” with “functional/dissociative seizures (F/DS)” arguing that some experts feel that PNES lacks acceptability and that many patients reject it. Which Experts?It is unclear what experts the authors are referring to since the Task Force did not consult

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Functional Seizures and Epilepsy: My dual diagnosis

The nonepileptic seizure Blog has invited author, Linda McClure, to tell us about her book “Mind Games.” It walks the reader through the experience of living with epilepsy and psychogenic nonepileptic seizures (PNES), also known as functional/dissociative seizures. This is a unique group of patients, often excluded from research and that can be difficult to

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Announcement: new poetry book by a young person living with PNES

Hello everyone,My name is Matina Alexis, and I’m so grateful to be here. I live with Psychogenic Non-Epileptic Seizures (PNES), and I’m still in the process of healing. I continue to experience seizures, and through my diagnosis, I uncovered the deeper cause: repressed childhood trauma. I once believed I had already faced and understood my

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Why it’s so important that adults living with psychogenic nonepileptic seizures (PNES) engage in self-care

More often than not, when I first meet my patients, it is evident that most of their lifetimes, self-care has been left by the wayside. My patients have been surviving, working hard, taking care of others, basically treading water for years.  And this has shortchanged them in the process.   As could be expected, at some

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Driving, depression, and psychogenic non-epileptic seizures (PNES)

The three items listed in the title of this blog post might seem unrelated but they  were part of an article that was published last month. The article drew some useful and thought-provoking conclusions that might be useful for clinicians working with PNES. The study described in “Characteristics of patients diagnosed with psychogenic non-epileptic seizures

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Very important resources for Health Professionals who work with psychogenic non-epileptic seizures (PNES)

Several times a month, I receive inquiries from psychotherapists who are working with their very first patient diagnosed with PNES or who have run into something unexpected.  These therapists have shown initiative by taking to the internet to find resources, which is a great sign. Somehow, they managed to come upon my name and email. 

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Summer Recommendations on books about psychogenic non-epileptic seizures (PNES) and epileptic seizures

I like a lot of things about the summer months including the warmer weather, the longer days, the fact that New York City becomes less crowded, traveling, and sitting or lying outside resting and catching some sunrays.  But what I especially enjoy about the summer is that I get to read the books that have

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PNES Poem

PNES Poem by Nita Dholakia To wake up in the morning is what I wish Waking up in the afternoon is my truth Morning or afternoon, getting up is my win Relaxed and peaceful sleep is now my dream Jolts and jerks with silent grunting Screaming from annoying pain My new routine is not plain

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The Psychogenic non-epileptic Seizures Pocketbook-Why Julia Doss wrote it

Writing the “Psychogenic Non-Epileptic Seizures Pocketbook” came about after many years of treating patients with PNES and training other clinicians in treating them. It has been humbling and rewarding to work with families and their children and watch them get better and grow into their adulthood. But this isn’t how my career initially started. In

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