I absolutely love this book! View from the Floor is such a delightful book that even after reading it 2 times, I still find it shakes me with its honesty and its superb writing style. Kate Berger speaks in a clear and strong voice throughout and shares generously with the reader. If you have ever […]
View from the Floor- Psychogenic non-epileptic seizures: A Patient’s Perspective Read More »
Although psychogenic seizures are definitely not a new disorder and are certainly a grave and often severely disabling health problem, there are painfully few new research studies that examine novel treatment options that might benefit persons suffering from PNES. So, I was especially pleased when I heard about this new project that is being conducted
This won’t be a surprise to many patients who have been diagnosed with PNES but some of you may be astonished to read: Very little if anything. Psychogenic non-epileptic seizures can go misdiagnosed for an average of 7.2 years.1 In an attempt to remedy this devastating delay, the National Association of Epilepsy Centers-NAEC has established
I must receive an average of 10 emails a week from across the US from persons diagnosed with psychogenic seizures (PNES), family members, nurses, and sometimes therapists. I try very hard to respond to every one as fully as I can, including links and other resources and as quickly as I can because I feel
Psychogenic non-epileptic seizures: What a Psychologist needs to know Read More »
For 14 years, ever since I first met my first patient diagnosed with PNES, I have known that PNES falls clearly within the scope of practice of psychologists, psychiatrists, and psychotherapists. These are the professionals who should be working with this group of patients and who can help them. A major obstacle however is that
From its very inception, this book of patient testimonials was crafted to give a voice to those who suffer from PNES. It was hoped that these voices would reach others who are similarly afflicted as well as family members, loved ones and health professionals. Because the testimonials included in the book came from across the
Very much like last year at our first annual PNES conference, this year’s PNES conference far outdid our expectations. The audience of patients and loved ones and the doctors who were present left feeling energized and hopeful, learned a tremendous amount from each other and will go on to work on projects this coming year.
I just finished reading this wonderful new book that has been added to the growing body of PNES literature. It is co-authored by Kate Taylor and Jeffrey Underwood. In just 85 pages, it provides the reader with a candid view of the struggles author Kate Taylor faced when she developed PNES and sought help from
This first half of this post is from September 2014 and the second portion is from June 2015 My name is JJ and I am 22. My seizures have been a sporadic problem since I was 13. They really became a problem December 2013. I had quit drinking in September, I later discovered my alcoholism
Treatment for psychogenic non-epileptic seizures: Love and light Read More »
In the last couple of weeks, an article started to appear in different social media outlets in which a neurologist was quoted as saying that an important contributing factor in functional illnesses (including seizures and paralysis) in children is that their parents are showering the children with “too much love and attention.” http://www.telegraph.co.uk/culture/hay-festival/11640715/Parents-can-be-too-nice-to-their-children-neurologist-warns.html There seems
