PNES Poem by Nita Dholakia To wake up in the morning is what I wishWaking up in the afternoon is my truthMorning or afternoon, getting up is my winRelaxed and peaceful sleep is now my dreamJolts and jerks with silent gruntingScreaming from annoying painMy new routine is not plainFeet and Legs want to coordinateWaist says, […]
Writing the “Psychogenic Non-Epileptic Seizures Pocketbook” came about after many years of treating patients with PNES and training other clinicians in treating them. It has been humbling and rewarding to work with families and their children and watch them get better and grow into their adulthood. But this isn’t how my career initially started. In
The Psychogenic non-epileptic Seizures Pocketbook-Why Julia Doss wrote it Read More »
Every year, all profits from the sale of “Psychogenic non-epileptic seizures: A guide” are donated to Epilepsy Alliance America, a wonderful foundation that hosts the Lorna Myers PNES Scholarship. This award is offered to any person living in the USA and who has a diagnosis of psychogenic non-epileptic seizures. The money that is granted can
Join me in congratulating the 2023 Lorna Myers PNES Scholarship awardees! Read More »
For six years straight, the Northeast Regional Epilepsy Group (NEREG), hosted an annual PNES conference for patients, caregivers, and in the last few years, for health professionals too. Our last and sixth conference was held in 2019 and then, as we all know, the world ground to a halt due to the 2020 pandemic. So,
For this month’s blog post, we have the pleasure and honor of having invited writer, Katie Berger, author of “View from the Floor: Psychogenic non-epileptic seizures: A patient’s perspective” share her experiences with us. Wonderfully, she has now been seizure-free for two years, but I urge you to read her story because in it you
In a few weeks, a new book on PNES is going to be published and will be called: The Psychogenic Non-Epileptic Seizures (also known as dissociative seizures) Pocketbook. The word “pocketbook” is in its title because it is meant to be just that: a book that a clinician might carry in her/his pocket for quick
For almost 20 years, I have been a school nurse. During one of my first years as a school nurse, I met a student with what health care providers were then calling pseudoseizures. While many school personnel were very supportive of this student, there were just as many who were NOT. I heard comments
Students living with psychogenic non-epileptic seizures (PNES)-a new study Read More »
I get asked about service dogs for PNES quite a bit and over the last few years, I have had the opportunity to observe my patients’ service dogs and emotional support animals in action. The ones who are really well-trained have left me very impressed at how useful they are in ensuring safety and also
For this month’s blog post, we have invited a young researcher to share her call for research subjects on this site. This research has been approved by an institutional review board and is completely voluntary. If you are interested in reading more about it or in participating if you fit the inclusion criteria, click on
Moral injury in female US combat veterans diagnosed with PNES Read More »
One of the ways in which we can help improve the lives of those living with PNES or dissociative seizures is through scientific research. Fortunately, in the last couple of decades, there has been a proliferation of research studies that have focused on risk, prognostic and outcome factors, diagnostic tools, treatment modalities, among other
