What is this?The Lorna Myers PNES Scholarship Fund is a dedicated financial aid program graciously administered by Epilepsy Alliance America and supported financially by Dr. Lorna Myers who donates all royalties from the sales of her book “Psychogenic nonepileptic seizures: A guide” to the scholarship. This scholarship supports students who reside in the US and […]
Functional seizures: Sanitized terminological shifts may seem progressive but can be harmful Late last year, an ILAE Task Force proposal (Hingray et al., 2025) was published, urging that the term “psychogenic nonepileptic seizures (PNES)” be replaced with the new and improved “functional/dissociative seizures (F/DS).” It is my understanding that some of the ILAE task force
Abandoning the term “psychogenic nonepileptic seizures” (PNES) in favor of “functional (dissociative) seizures” or simply “functional seizures” needs to be examined. We need to consider possible unintended negative consequences of this name change. My sense of urgency comes from a troubling scenario I foresee. Read on and feel free to challenge me on this or
Choosing “functional seizures” over PNES: what might happen Read More »
The nonepileptic seizure Blog has invited author, Linda McClure, to tell us about her book “Mind Games.” It walks the reader through the experience of living with epilepsy and psychogenic nonepileptic seizures (PNES), also known as functional/dissociative seizures. This is a unique group of patients, often excluded from research and that can be difficult to
Functional Seizures and Epilepsy: My dual diagnosis Read More »
Hello everyone,My name is Matina Alexis, and I’m so grateful to be here. I live with Psychogenic Non-Epileptic Seizures (PNES), and I’m still in the process of healing. I continue to experience seizures, and through my diagnosis, I uncovered the deeper cause: repressed childhood trauma. I once believed I had already faced and understood my
Announcement: new poetry book by a young person living with PNES Read More »
More often than not, when I first meet my patients, it is evident that most of their lifetimes, self-care has been left by the wayside. My patients have been surviving, working hard, taking care of others, basically treading water for years. And this has shortchanged them in the process. As could be expected, at some
I like a lot of things about the summer months including the warmer weather, the longer days, the fact that New York City becomes less crowded, traveling, and sitting or lying outside resting and catching some sunrays. But what I especially enjoy about the summer is that I get to read the books that have
PNES Poem by Nita Dholakia To wake up in the morning is what I wish Waking up in the afternoon is my truth Morning or afternoon, getting up is my win Relaxed and peaceful sleep is now my dream Jolts and jerks with silent grunting Screaming from annoying pain My new routine is not plain
Writing the “Psychogenic Non-Epileptic Seizures Pocketbook” came about after many years of treating patients with PNES and training other clinicians in treating them. It has been humbling and rewarding to work with families and their children and watch them get better and grow into their adulthood. But this isn’t how my career initially started. In
The Psychogenic non-epileptic Seizures Pocketbook-Why Julia Doss wrote it Read More »
Every year, all profits from the sale of “Psychogenic non-epileptic seizures: A guide” are donated to Epilepsy Alliance America, a wonderful foundation that hosts the Lorna Myers PNES Scholarship. This award is offered to any person living in the USA and who has a diagnosis of psychogenic non-epileptic seizures. The money that is granted can
Join me in congratulating the 2023 Lorna Myers PNES Scholarship awardees! Read More »
