PNES awareness Archives - Non Epileptic Seizures

The Psychogenic non-epileptic Seizures Pocketbook-Why Julia Doss wrote it

1 Comment / 2023 / Lorna Myers

Writing the “Psychogenic Non-Epileptic Seizures Pocketbook” came about after many years of treating patients with PNES and training other clinicians in treating them. It has been humbling and rewarding to work with families and their children and watch them get better and grow into their adulthood. But this isn’t how my career initially started. In […]

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The Psychogenic Nonepileptic Seizure Pocketbook: Why I wrote it

Virtual psychogenic non-epileptic seizures conference for patients, loved ones and their clinicians: Update on current treatments for PNES in adults and children

3 Comments / 2023, News / administrator

For six years straight, the Northeast Regional Epilepsy Group (NEREG), hosted an annual PNES conference for patients, caregivers, and in the last few years, for health professionals too. Our last and sixth conference was held in 2019 and then, as we all know, the world ground to a halt due to the 2020 pandemic. So,

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Testimonial: Two years seizure free

Leave a Comment / 2023, News / administrator

For this month’s blog post, we have the pleasure and honor of having invited writer, Katie Berger, author of “View from the Floor: Psychogenic non-epileptic seizures: A patient’s perspective” share her experiences with us. Wonderfully, she has now been seizure-free for two years, but I urge you to read her story because in it you

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New: The Psychogenic Non-Epileptic Seizures (also known as dissociative seizures) Pocketbook

2 Comments / 2023, News / administrator

In a few weeks, a new book on PNES is going to be published and will be called: The Psychogenic Non-Epileptic Seizures (also known as dissociative seizures) Pocketbook. The word “pocketbook” is in its title because it is meant to be just that: a book that a clinician might carry in her/his pocket for

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Students living with psychogenic non-epileptic seizures (PNES)-a new study

4 Comments / 2022, News / administrator

For almost 20 years, I have been a school nurse. During one of my first years as a school nurse, I met a student with what health care providers were then calling pseudoseizures. While many school personnel were very supportive of this student, there were just as many who were NOT. I heard comments

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Psychogenic non-epileptic seizures (PNES)/ functional seizure (FS) conference 2021! It is back on-bigger and better

5 Comments / 2021, News / administrator

For six years straight, the Northeast Regional Epilepsy Group (NEREG), hosted an annual PNES conference for patients, caregivers, and in the later years, for health professionals too. Our last conference was held on 2019 and then, as we all know, the world ground to a halt due to the 2020 pandemic. Although we did not

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Meet the new Executive Director of FND Hope USA

3 Comments / 2021, News / administrator

There is so much that we need to do to improve the lives of those living with PNES. We definitely need to increase treatment options and to ensure a growing number of clinicians are available to treat this health condition. To achieve this, research on treatment outcome is a necessity, and as such, funding is

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Recommendations for summer reading: a variety of choices about and by persons living with Psychogenic non-epileptic seizures (PNES)

Leave a Comment / 2021, News / administrator

Psychoeducation: refers to some form of intervention (lecture, support group meeting or published materials) that aims to educate the audience members/readers about a specific health condition, provides coping suggestions and informs about treatment options. Usually, psychoeducation is provided by health professionals but not necessarily; patients who have educated themselves about their health issues can prove

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The debate on what to call psychogenic non-epileptic seizures (PNES), non-epileptic attach disorder (NEAD), dissociative seizures, functional seizures, etc. continues

4 Comments / 2021, News / administrator

This feature article was just published by the International League Against Epilepsy (ILAE) and summarizes meetings that took place last year. https://www.newswise.com/articles/what-should-we-call-psychogenic-non-epileptic-seizures Note: I will continue to call PNES by this name below since we do not have a better term yet. Why is this important what we call this disorder, you might ask?

The debate on what to call psychogenic non-epileptic seizures (PNES), non-epileptic attach disorder (NEAD), dissociative seizures, functional seizures, etc. continues Read More »

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