A little while back, Alyssa Curtis was selected as a recipient of the Lorna Myers PNES Scholarship. It is wonderful to see how far she has come since then; she not only graduated from college with multiple degrees but has now also written a wonderful book to raise PNES-awareness and which is a beautiful ode […]
Saving Stripes: A book about nonepileptic seizures (PNES) and a zoo Read More »
What is a SAP? Seizure action plans are personalized, written documents created with your healthcare provider and include your diagnosis, a description of your typical episodes, and instructions for others witnessing the seizure on how to respond appropriately. They also typically include the name and number of your emergency contact person. Sample SAP:Seizure Action Plan
Seizure Action Plans (SAP) for psychogenic nonepileptic seizures (PNES) Read More »
Abandoning the term “psychogenic nonepileptic seizures” (PNES) in favor of “functional (dissociative) seizures” or simply “functional seizures” needs to be examined. We need to consider possible unintended negative consequences of this name change. My sense of urgency comes from a troubling scenario I foresee. Read on and feel free to challenge me on this or
Choosing “functional seizures” over PNES: what might happen Read More »
A recent ILAE Task Force proposal (Hingray et al., 2025) recommends replacing the term “psychogenic nonepileptic seizures (PNES)” with “functional/dissociative seizures (F/DS)” arguing that some experts feel that PNES lacks acceptability and that many patients reject it. Which Experts?It is unclear what experts the authors are referring to since the Task Force did not consult
Hello everyone,My name is Matina Alexis, and I’m so grateful to be here. I live with Psychogenic Non-Epileptic Seizures (PNES), and I’m still in the process of healing. I continue to experience seizures, and through my diagnosis, I uncovered the deeper cause: repressed childhood trauma. I once believed I had already faced and understood my
Announcement: new poetry book by a young person living with PNES Read More »
I like a lot of things about the summer months including the warmer weather, the longer days, the fact that New York City becomes less crowded, traveling, and sitting or lying outside resting and catching some sunrays. But what I especially enjoy about the summer is that I get to read the books that have
