treatment for PNES

With all the exceptional research being conducted on PNES/NEAD, is this seriously the article that was chosen to be highlighted by the Epilepsy Foundation of America (EFA) in their effort to address the PNES topic?

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I remember like it was yesterday, while still a fellow in training, an attending doctor said: Lorna, when you start publishing in the future, make sure you don’t just publish noise. When I asked what he meant by that, he explained that too many articles published in scientific journals are just noise, static like on …

With all the exceptional research being conducted on PNES/NEAD, is this seriously the article that was chosen to be highlighted by the Epilepsy Foundation of America (EFA) in their effort to address the PNES topic? Read More »

What are a lot of epilepsy centers in the US doing for their patients once they diagnose them with psychogenic non-epileptic seizures (PNES)?

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 This won’t be a surprise to many patients who have been diagnosed with PNES but some of you may be astonished to read:  Very little if anything. Psychogenic non-epileptic seizures can go misdiagnosed for an average of 7.2 years.1 In an attempt to remedy this devastating delay, the National Association of Epilepsy Centers-NAEC has established …

What are a lot of epilepsy centers in the US doing for their patients once they diagnose them with psychogenic non-epileptic seizures (PNES)? Read More »

Why do children have psychogenic seizures (PNES)? Is it because their parents are too nice to them?

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In the last couple of weeks, an article started to appear in different social media outlets in which a neurologist was quoted as saying that an important contributing factor in functional illnesses (including seizures and paralysis) in children is that their parents are showering the children with “too much love and attention.”  http://www.telegraph.co.uk/culture/hay-festival/11640715/Parents-can-be-too-nice-to-their-children-neurologist-warns.html There seems …

Why do children have psychogenic seizures (PNES)? Is it because their parents are too nice to them? Read More »

Challenges in the management of Psychogenic seizures: Are we playing a role in this?

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This weekend, I was reading a paper by Dr. Gaston Baslet and his colleagues (Treatment of Psychogenic non-epileptic seizures: Updated review and findings from our mindfulness-based intervention case series, 2014 Clinical EEG and Neuroscience).  On page 9 the authors discuss something that was not the main topic of the paper, but that struck me as worthy …

Challenges in the management of Psychogenic seizures: Are we playing a role in this? Read More »

A historic meeting in Mahwah, NJ shines a light on psychogenic non-epileptic seizures

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A month ago, we were still in the throes of planning our first conference on psychogenic non-epileptic seizures (PNES). We had PNES brochures printed up, we had ordered many copies of “Psychogenic non-epileptic Seizures: A Guide” to give out at the registration desk, we had purple and teal charms ready, and all our speakers were …

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Psychogenic non-epileptic seizures: Ming shares her story of living with PNES

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My psychogenic seizures began like this: I was exposed to “Workplace Bullying.” Even though I had exemplary yearly evaluations my supervisor began the bullying and as it increased I reported it to the head boss. They planned to have 5 back to 5 meetings in one day with him and others (there’s a term for …

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Treating Psychogenic non-epileptic seizures: Only half of US psychiatrists accept payment through health insurance

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An article came out earlier this week in USA Today that underscored a very serious problem that persons with psychogenic non epileptic seizures (and other mental health conditions) face.  Only half of psychiatrists accept insurance which means that if you need treatment you need to be prepared to pay large out-of-pocket fees. This is not …

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Creating proper treatment programs for psychogenic non-epileptic seizures in the US

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In June and July of this year I blogged on how poor standard of care is in the US for many patients diagnosed with psychogenic non-epileptic seizures. However, this month I am happy to write about a positive experience I had at Overlook Hospital of Summit, New Jersey. In the summer, I blogged about deficient …

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Are all patients diagnosed with psychogenic non-epileptic seizures (PNESs) the same? Patients with PNES and PTSD are looking different.

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What unites patients with PNES into a single category? The fact that they have abnormal behaviors and changes in consciousness that resemble an epileptic seizure, but that are in fact non-epileptic as per EEG? However, right about there is where the similarity ends. To bunch all of PNES patients into one bag and hope to …

Are all patients diagnosed with psychogenic non-epileptic seizures (PNESs) the same? Patients with PNES and PTSD are looking different. Read More »

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