Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify

A researcher of the brain You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is hope).  And one of the key ways in which we continue moving forward in making more improvements for those living...

Prolonged exposure therapy for the treatment of patients diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD)

We’d be hard pressed to find a clinician or researcher who doesn’t agree that the proper treatment for a confirmed diagnosis of psychogenic non-epileptic seizures (PNES) or non-epileptic attack disorder (NEAD-as it is called in the UK) is some form of psychotherapy.  Although, we’ve known this for decades, we’re still sorely uncertain as to which psychotherapeutic treatment modalities are not just most...

What do those diagnosed with psychogenic non-epileptic seizures receive along with the diagnosis of PNES when they are discharged?

For many it may have taken months to years to reach the point of lying in the hospital bed hearing the words: you don’t have “epilepsy,” you have something we call “psychogenic non-epileptic seizures” or “non-epileptic attack disorder.”  Getting here may have involved being seen by more than one doctor, receiving all sorts of other diagnoses (e.g. epilepsy), taking medications that did nothing to...

With all the exceptional research being conducted on PNES/NEAD, is this seriously the article that was chosen to be highlighted by the Epilepsy Foundation of America (EFA) in their effort to address the PNES topic?

I remember like it was yesterday, while still a fellow in training, an attending doctor said: Lorna, when you start publishing in the future, make sure you don’t just publish noise. When I asked what he meant by that, he explained that too many articles published in scientific journals are just noise, static like on the radio, and that they have little or no value. This week, I ran across an article on PNES that...

What are a lot of epilepsy centers in the US doing for their patients once they diagnose them with psychogenic non-epileptic seizures (PNES)?

 This won’t be a surprise to many patients who have been diagnosed with PNES but some of you may be astonished to read:  Very little if anything. Psychogenic non-epileptic seizures can go misdiagnosed for an average of 7.2 years.1 In an attempt to remedy this devastating delay, the National Association of Epilepsy Centers-NAEC has established the following guidelines: a) When a patients seizures have not been...

« Previous Entries