Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

A historic meeting in Mahwah, NJ shines a light on psychogenic non-epileptic seizures

A month ago, we were still in the throes of planning our first conference on psychogenic non-epileptic seizures (PNES). We had PNES brochures printed up, we had ordered many copies of “Psychogenic non-epileptic Seizures: A Guide” to give out at the registration desk, we had purple and teal charms ready, and all our speakers were working hard on their lectures.  We suspected that it had the potential to be a...

Psychogenic non-epileptic seizures: Love and Light

  My name is JJ and I am 22. My seizures have been a sporadic problem since I was 13. They really became a problem December 2013. I had quit drinking in September, I later discovered my alcoholism was suppressing my seizures. My seizures became unbearable, I was unable to do the things I used to, I began seeking and searching for answers. Every time I would go to the hospital they would tell me I was “faking...

Psychogenic non-epileptic seizures: Ming shares her story of living with PNES

My psychogenic seizures began like this: I was exposed to “Workplace Bullying.” Even though I had exemplary yearly evaluations my supervisor began the bullying and as it increased I reported it to the head boss. They planned to have 5 back to 5 meetings in one day with him and others (there’s a term for this “Mobbing”). The evening before the meetings, I began to prepare my clothes for the...

Treating Psychogenic non-epileptic seizures: Only half of US psychiatrists accept payment through health insurance

An article came out earlier this week in USA Today that underscored a very serious problem that persons with psychogenic non epileptic seizures (and other mental health conditions) face.  Only half of psychiatrists accept insurance which means that if you need treatment you need to be prepared to pay large out-of-pocket fees. This is not news for anyone who has tried to find a psychiatrist for a patient (I run into...

Creating proper treatment programs for psychogenic non-epileptic seizures in the US

In June and July of this year I blogged on how poor standard of care is in the US for many patients diagnosed with psychogenic non-epileptic seizures. However, this month I am happy to write about a positive experience I had at Overlook Hospital of Summit, New Jersey. In the summer, I blogged about deficient care for PNES in neurology and mental health settings in the US. First, how the PNES patient management in...

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