Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Psychogenic non-epileptic seizures was prominently featured at the American Epilepsy Society Meeting (AES) in Seattle, WA in December 2014

The condition of psychogenic non-epileptic seizures has for a very long time been a bit of an orphan in the health field.  It can take up to seven years on average to receive the right diagnosis and even once it is made, too often the patients experience a “ping pong effect” of being referred from neurology to psychiatry/psychology only to be sent back to neurology and back and forth.  There are so many things...

Psychogenic non-epileptic seizures: beginning a grassroots movement on September 20, 2014?

Even though psychogenic disorders, including psychogenic non-epileptic seizures (PNES) have been around for centuries, they continue to be the subject of ignorance and stigma.  Often, the general public as well as health professionals (including emergency medical personnel, neurologists, and mental health professionals) do not understand them and can end up making things worse.   Patients and families struggle to...

Health Professionals Need to become educated about Psychogenic seizures (PNES)

Recently I read a couple of comments about psychogenic seizures on an epilepsy professional Forum and was thoroughly disappointed and irritated to say the least.   Although the tone of the comments was essentially professional and apparently trying to be helpful, I was taken aback by how dismissively the PNES patient was spoken of by these professionals who are the front line health providers, perhaps some of the...

Katie offers advice on psychogenic non-epileptic seizures at the workplace

Katie is contributing this month’s blog post.  In it she gives useful advice based on her own experiences about how to deal with PNES in the workplace.  She describes “The Talk” that you may want to have with your boss and workmates and how you might explain to them what you need them to do in the event that you have an episode.  Opinions and comments are welcome (remember that when they are...

Psychogenic non-epileptic seizures: Ming shares her story of living with PNES

My psychogenic seizures began like this: I was exposed to “Workplace Bullying.” Even though I had exemplary yearly evaluations my supervisor began the bullying and as it increased I reported it to the head boss. They planned to have 5 back to 5 meetings in one day with him and others (there’s a term for this “Mobbing”). The evening before the meetings, I began to prepare my clothes for the...

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