Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Recently, I put out an invitation to persons living with PNES to submit writing samples (poems, write-ups, personal stories, etc).  The purpose of opening up the blog like this is to give a voice to persons living with PNES on a platform that is read in the US and abroad and that will reach others who are feeling alone with this diagnosis.  Olivia quickly contacted me and sent this write-up which she and I hope...

New International Research Project for persons living with PNES (NEAD)

Six months ago, Prof. Markus Reuber and one of his doctoral graduate students launched a research study in which patients diagnosed with PNES and epilepsy were invited to participate in a writing experience that tested whether this helped them feel more in control of their condition and reduce their seizures and improve their quality of life. Now, Dr. Catherine Robson and Prof. Markus Reuber are launching a second...

Pseudoseizures, the bias held by some health professionals and this really has to stop!

Warning: the content in this blog post may be upsetting and hurtful to the reader-it contains insulting and coarse language found on-line describing patients with PNES For a few months three of us have been working on a project examining how often PNES (and all the other names that this condition goes by) appears in the Internet and creating sort of tally.  The way we approached this search task was by entering...

Psychogenic non-epileptic seizures was prominently featured at the American Epilepsy Society Meeting (AES) in Seattle, WA in December 2014

The condition of psychogenic non-epileptic seizures has for a very long time been a bit of an orphan in the health field.  It can take up to seven years on average to receive the right diagnosis and even once it is made, too often the patients experience a “ping pong effect” of being referred from neurology to psychiatry/psychology only to be sent back to neurology and back and forth.  There are so many things...

Psychogenic non-epileptic seizures: beginning a grassroots movement on September 20, 2014?

Even though psychogenic disorders, including psychogenic non-epileptic seizures (PNES) have been around for centuries, they continue to be the subject of ignorance and stigma.  Often, the general public as well as health professionals (including emergency medical personnel, neurologists, and mental health professionals) do not understand them and can end up making things worse.   Patients and families struggle to...

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