Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

A fantastic new book on psychogenic non-epileptic seizures “In our words” and why some health professionals should read it

This blog post has two parts to it. The first part will talk about a wonderful new book called “In Our Words” edited by Markus Reuber, Gregg Rawlings and Steven C. Schachter and which features testimonials of those living with PNES from around the world.  It can be pre-ordered on Amazon with official release date of June 26,...

Raising PNES awareness

Every so often, I have an invited writer contribute something relevant to PNES on this blog.  Recently, I heard from John Dougherty, author of “Lowering the Shield: Overcoming Psychogenic Seizures” about a disappointing event in his continuing efforts to improve the lives of those living with PNES.  I agreed with him that it merits being shared with the PNES community and may help us, as a community,...

Recently, I put out an invitation to persons living with PNES to submit writing samples (poems, write-ups, personal stories, etc).  The purpose of opening up the blog like this is to give a voice to persons living with PNES on a platform that is read in the US and abroad and that will reach others who are feeling alone with this diagnosis.  Olivia quickly contacted me and sent this write-up which she and I hope...

New International Research Project for persons living with PNES (NEAD)

Six months ago, Prof. Markus Reuber and one of his doctoral graduate students launched a research study in which patients diagnosed with PNES and epilepsy were invited to participate in a writing experience that tested whether this helped them feel more in control of their condition and reduce their seizures and improve their quality of life. Now, Dr. Catherine Robson and Prof. Markus Reuber are launching a second...

Pseudoseizures, the bias held by some health professionals and this really has to stop!

Warning: the content in this blog post may be upsetting and hurtful to the reader-it contains insulting and coarse language found on-line describing patients with PNES For a few months three of us have been working on a project examining how often PNES (and all the other names that this condition goes by) appears in the Internet and creating sort of tally.  The way we approached this search task was by entering...

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